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when Kim was still walking without support, Dan founda soft helmet used primarily for children with epilepsyto protect her head. He found a special hearing aid forhimself that he wears and a companion microphone thatKim wears to help amplify Kim’s soft quiet voice. Theyhave tried many mobility aids—walkers, wheelchairsand scooters—to enable Kim to maintain some level ofindependence. The couple recently tried stem cell therapythat was effective in healing Kim’s degenerated disc thatwas causing pain in her foot, but they have not seen anychanges to her PSP symptoms.Dan and Kim Heins have been married for 34 years. Theymet through friends at church, immediately fell in loveand quickly married. Dan has worked at Humana for 30years and is the Director of the Claims IT department.After staying home with their two children through middleschool, Kim completed cosmetology school and then cuthair for about 10 years, though she later decided not topractice as a full-time hairstylist.Before being diagnosed with Parkinson’s disease inJanuary of 2010, the Heins began noticing several issueswith Kim. Her speech went soft and low and she beganstumbling, tripping and sometimes falling. Thinking it wasan inner ear imbalance, Kim visited her ENT physician, butnothing came of those visits. Finally, she was referred toa neurologist who made the Parkinson’s diagnosis. Oneyear later, they learned Kim had the atypical form of PD,Progressive Supranuclear Palsy or PSP.Immediately, the couple began tackling it head on. Theybegan seeing Movement Disorder specialists at theUniversity of Louisville and through UofL, joined a clinicaltrial for a new drug to treat PSP. After taking this study drugfor a year, it was ultimately determined to be ineffective intreating this disease. With PSP, most Parkinson drugs arenot as effective as they can be for patients with regularsymptoms of PD. PSP is quite aggressive and attacksthe lower part of the brain that controls vision, speech,swallowing as well as the other PD symptoms related tomovement. But with Dan by her side, Kim has been ableto adjust to the disease and fight like a champion.The couple has had to make several adjustments tomaintain a comfortable quality of life for them. Early onKim now requires 24-hour care. When Dan is at the office,her mother and his father step in. They have also hired aclose friend to help out two days a week. Several monthsago, Kim’s swallowing challenges prohibited her fromeating and she lost a lot of weight. Instead of followingthe doctor’s advice and calling in hospice, Kim and Danelected to introduce a feeding tube for her dietary needs.Kim has since gained most of her weight back. Theycontinue to use the feeding tube at night and she enjoys alimited diet (many soft foods) during the day.Shortly after Kim was diagnosed, she found the Centerand began volunteering in the office. They attended theMiddletown Support Group “to meet others and knowwhat to expect” and to be in community with otherpatients and caregivers. Today, Dan serves on the boardand they lead both the Middletown and Atypical supportgroups the Center offers.Though Dan still maintains his full-time job at Humana, herefuses to give up on his wife and vows never to put her ina nursing home. He has recently lost 70 lbs over the pastfive months in order to improve his health and be therefor Kim. He is assured that Kim would have cared for himas he has for her and likens his service to his Christianprinciples. “I love Kim so very much and though I couldnever compare myself to Him, taking care of Kim givesme the opportunity to be a little more like Jesus.”The Heins have two adult children. Their daughter, Lauren,is married with a six month old and lives in Shelbyville andtheir son, Andy, is also married with a four year old andresides in Nashville.P O RT R A I T SIN CARING

Special RecognitionCharles D. Lucas, Jr.Karen deGraafThe Center would like to acknowledge the bequest inhonor of the late Charles D. Lucas, Jr. The dedication andphilanthropic spirit of C. D. Lucas, Jr. is continuing to servethe Parkinson’s community. He was one of three foundersof The Lucas Spencer Zoeller Society—a recognitionprogram that honors the philanthropic efforts of donorsto The Center.Board of Directors Member Karen deGraaf passed awayin October 2014. Along with service to the organization,Karen was also influential in creating awareness by servingas the voice for Southern Indiana. Her kindness andgenerosity for people who were suffering provided proofthat she was not just a patient, but also a caregiver forthose with PD. Her dedication and service to the missionof the Center can never be matched. We will miss her!His legacy is appreciated and lives on through all of hishard work and gifts.We thank he and his family for their support!2014VOLUNTEEROF THE YEARJay MillerWhen Jay Miller was initially diagnosed withParkinson’s, he says he was given a brochure aboutThe Center but ignored it. His first personal encounterwith the organization was when he and his wifeattended a J-Town support group meeting to hear froma neurologist. He then occasionally started attendingthose meetings. Next, he began Tai Chi and yogaclasses — meeting others who were connected to TheCenter. Adina Cook, a past The Center staffer, askedJay if he’d be interested in starting a men’s supportgroup for less-seasoned gentlemen with PD. TheMovers and Shakers support group became Jay’s firstleadership opportunity with The Center and as the grouphas grown so has his commitment. Jay has served onthe board of The Center for 3 years. His caring spiritand talkative nature are credited with him spreadingthe word about The Center programs and connectingothers to the organization. He continues his supportby recruiting good board members and will soon serveon the Executive Committee—focusing his energy onboard development.Jay retired from Nationwide Insurance after 31 yearsand enjoys spending time with his great niece andnephews. When asked how The Center has been mostbeneficial, Jay contends that “being in community withothers affected by PD, helping others by connectingthem with the organization and developing long-lastingfriends are all reasons I continues to serve The Center.”Thanks Jay for your service!

Parkinson Support CenterDENIM&of Kentukiana’sDIAMONDSGALA CELEBRATIONDENIM & DIAMONDSCOMMITTEESPECIAL THANKS TOOUR SPONSORS!SANDY COLLINS & ABBY THONENCO-CHAIRSSusan AndriotTara BassettJerry BloomKen HodgeChris MengColleen O’HaraKathy PantherRose PasqualiniMike PfeifferChrista SteinrockDennis WhittingtonBARBARA NICHOLSTOM MUSSELMAN, SR.BILL COLLINS FORDThanks and hats off to ALL!!KENTUCKY ONE HEALTHOnce again, our supporters and friends gatheredto celebrate the lives of those affected by andliving with Parkinson’s. Attendees enjoyed livemusic, great food and the opportunity to donatemore through our awesome auctions! From thegenerous support of this event, we raised over 40,000 for The Center to continue and enhancethe programs that improve the quality of life ofthose living with Parkinson’s disease.PNC BANKRJ CORMAN RAILROAD GROUPUS WORLDMEDSWOOD AND MARIE HANNAH FOUNDATION

In October, the center hosted the 9thAnnual Frances E. Lang Living Well withParkinson’s Disease Symposium.The purpose of the annual Symposium isto bring together a variety of experts inthe field of Parkinson’s disease in order toeducate and equip attendees with tools tomanage the disease. In 2014, guest learnedfrom presenters on the following topics:DBS - How it Helps Patients’ Symptomsand Quality of LifePresenter: Dr. Craig van Horne, M.D. Professorof Neurology, Kentucky Neuroscience InstituteCan We Slow the Progression ofParkinson’s Disease?Presenter: Dr. Gerhardt , Ph.D. Director, MorrisK. Udall Parkinson’s Disease Research Center ofExcellenceHolistic Treatments to Control PDPresenter: Ann Hanley, Research Advocate,Parkinson’s Disease FoundationTapping Into Your Inner Strength, RaisingYour Aware-ness, Developing Your TribeJohn Baumann (Keynote speaker) Author of“Decide Success”2014LIVING WELLSYMPOSIUMUnderstanding the Causes of Parkinson’sDisease – How Far Have We Come?Presenter: Dr. Kathrin LaFaver, M.D. AssistantProfessor of Neurology, University of Louisville,Division of Movement DisordersManaging Cognitive and BehavioralAspects of PDPresenter: Dr. Brandon Dennis, PSY.D.Neuropsychologist, Frazier Rehab andNeuroscience CenterContinuous Dopaminergic TherapyDr. Angela Hardwick, M.D.Movement Disorder Specialist, NortonNeuroscience CenterDBS Surgery overview, including determiningappropriate candidates, using intraoperativeCT, and the At las Project to assist withimproved outcomesPresenter: Dr. Todd Shanks, M.D.Neurosurgeon, Norton Neuroscience CenterA Special Thank YouSymposium Sponsors & ExhibitorsTitle SponsorShuttle SponsorUS WorldMedsBill Collins Ford LincolnGold SponsorExhibitorsNorton Neuroscience InstituteFrazier RehabSilver SponsorsInstitute/Kentucky One HealthHosparus Medtronic, Inc. TrilogyBrightStar of KentuckyGentiva Home HealthKentucky Elderlaw, PLLCHealth Services Nazareth Home

2014FINANCIALOVERVIEWChanges in RevenueOverall, the Center has done well financially over the last year. Contributions andgrants grew by 15 percentage points largely due to generous private donations.Program income decreased some and reflects the Center’s goal to provideaffordable or free services to the community. The organization was in transitionbetween FY 2013-2014 and the lack of staff leadership caused the drop in specialevents income. The Center is now fully staffed and anticipates an increase inspecial events revenue stream in the future.Annual Revenue By Source 250,000 225,00077% 200,00062% 175,000 150,000 125,000 100,00029% 75,000Contributions & Grants 50,00015% 25,000Program Income9%8% 0Special Events20152014HOW WE SPENT IT?FY 2013-14, revenuesfell by 12% and expensesdropped by 19%.34%8%FY 2014EXPENSESProgram expenses were the primaryexpense for the Center and accountedfor nearly 60% of the budget—refle

Ann Hanley Center for Advanced Brain Restoration Technology Dan Heins Humana Kathy Panther Frazier Rehab Institute Joan Prentice Hosparus Ray Whitener University of Louisville (retired) Dennis Whittington YUM! Brands (retired)