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AGENDA / New York, NY / March 7, 2020This meeting is being held in partnership withTimeTopic9:00 am – 9:15 amWelcome & IntroductionsEmily LippertProgram ManagerAmerican Brain Tumor AssociationProgram Co-Chairs:Erik P. Sulman, M.D., Ph.D.Professor and Vice-Chair of ResearchDepartment of Radiation OncologyCo-Director, Brain and Spine Tumor CenterLaura and Isaac Perlmutter Cancer CenterNYU Langone HealthSylvia C. Kurz, M.D., Ph.D.Assistant Professor of Neurology, Hematology and Medical OncologyNeuro-oncologist, Brain and Spine Tumor CenterLaura and Isaac Perlmutter Cancer CenterNYU Langone Health9:15 am – 9:30 amAbout The ABTARalph DeVittoPresident & CEOAmerican Brain Tumor Association9:30 am – 9:45 amSponsor Lightening RoundMeet the Sponsors. Each will share a brief introduction of resources they offer topatients and their families.9:45 am – 10:30 amThe Multidisciplinary Approach to Patient Care – Focus on physicalrehabilitation, nutrition and emotional supportA multi-disciplinary panel of experts will review and discuss brain tumor cases.Attendees will learn how these experts work together beyond radiation andchemotherapy to care for patients and their families in the most comprehensive way.Attendees will have the opportunity to ask questions.Facilitator:Sylvia C. Kurz, M.D., Ph.D.Assistant Professor of Neurology, Hematology and Medical OncologyLaura and Isaac Perlmutter Cancer CenterPanelists:
Erik P. Sulman, M.D., Ph.D.Professor and Vice-Chair of ResearchDepartment of Radiation OncologyLaura and Isaac Perlmutter Cancer CenterConstantinos G. Hadjipanayis, M.D., Ph.D.Professor of Neurosurgery and Director of Neurosurgical OncologyMount Sinai Health SystemChristine Cordova, M.D.Assistant Professor of Neurology, Hematology and Medical OncologyLaura and Isaac Perlmutter Cancer CenterJonas Sokolof, D.O.Director, Oncological RehabilitationNYU Langone Health10:30 am – 10:45 amQuestion & Answer10:45 am – 11:30 amLiving with a Brain Tumor: Patient & Caregiver Survivorship PanelLocal patients and caregivers share their journey as they are navigating through theprocess of living with a brain tumor or caring for their loved one who has a braintumor. This session will give attendees the opportunity to participate in a discussionand relate with other patients and caregivers who are walking through a similarjourney. Attendees will have the opportunity to ask questions to the patient andcaregiver panelists.Facilitators:Amanda Bontempo, MS, RD, CSO, CDNOncology Registered Dietition/NutritionistSurvivorship and Wellness ManagerNYU Perlmutter Cancer CenterTamar Press, Psy.D,Clinical PsychologistPerlmutter Cancer CenterPanelists:Local Patient and Caregiver Panelists11:30 am – 11:45 amQuestion and Answer11:45 am – 12:30 pmNeuro-Oncology & Palliative Care: What to Expect at Every StageThis session will provide an overview of supportive & palliative care and its benefits,why it may be a useful tool from early diagnosis into survivorship, and how it can beharnessed at end-of-life care. Attendees will also learn how to work with specialiststo design a care plan that meets your individual needs and understand its role inaddressing long-term symptomsAlan Carver, MDNeurologistMemorial Sloan Kettering Cancer Center
12:30 pm – 12:45pmQuestion and Answer12:45 pm – 1:45 pmClosing RemarksEmily LippertProgram ManagerAmerican Brain Tumor Association
RESOURCE FAIRIn addition to the program sessions, we encourage you to visit the resource fair for local andregional brain tumor resources and support, including treatment centers, support groups andallied care providers.The American Brain Tumor Association thanks the following organizations for their support in theresource fair:NYU Langone HealthGT Medical TechnologiesIntegra FoundationCancer CarePediatric Brain Tumor FoundationOur Brain BankNovocureOrbus TherapeuticsStupid CancerGilda’s Club NYUCorporate Angel NetworkThe American Brain Tumor Association thanks our generous partners, sponsors, funders andsupporters who helped make this meeting possible.Funded in part by Genentech
PATIENT AND CAREGIVER SUPPORTA brain tumor diagnosis can be extremely overwhelming for patients and their loved ones. TheABTA offers support and information about treatments, side effects and the overall progression ofthe illness.The ABTA toll-free CareLine 1-800-886-ABTA (2282) is staffed by caring professionals who areavailable Monday – Friday, 8:30 a.m. – 5:00 p.m. CT to help connect patients and caregivers withinformation and resources that can help support them on their brain tumor journey.ABTA Connections is a 24/7 online support community that links patients, families and friendswith each other for support and inspiration.All information can be found www.abta.org.The ABTA website, www.abta.org, is recognized internationally as a comprehensive andtrustworthy source of brain tumor information for patients, caregivers, families and health careprofessionals. Here you can find information about: Adult and pediatric brain tumors – anatomy, tumor types, diagnosis, treatment and otherhelpful informationInformation for the newly diagnosedAdult and pediatric caregiver resource centersBrochures related to tumor types and treatment optionsEducational webinars from nationally-recognized health, medical and scientific expertsLocal resources, including support groups and patient education conferencesSharing your brain tumor story and registering for communications that will keep youcurrent on research, treatment developments, and ABTA programs and services
BROCHURESThe American Brain Tumor Association is a trusted resource for brain tumor patients, caregiversand health care professionals around the country. We offer a wide range of brochures that can beaccessed and downloaded from our website, or you can request hard copies by calling ourCareLine at 800-886-ABTA (2282). About Brain Tumors: A Primer for Patients and CaregiversBrain Tumors – A Handbook for the Newly Diagnosed*Brain Tumor Dictionary*Caregiver Handbook*Returning to Work after a Brain Tumor Diagnosis*Quick Guide to the Family Medical Leave Act*Tumor TypesTreatmentsEpendymomaGlioblastoma and Anaplastic AstrocytomaMedulloblastomaMeningiomaMetastatic Brain TumorsOligodendroglioma and OligoastrocytomaPituitary TumorsChemotherapyClinical TrialsConventional Radiation TherapyProton TherapyStereotactic Radiosurgery*SteroidsSurgery*These brochures are not yet available fordownload in rch: American Brain Tumor AssociationConnections: ation
ABOUT THE ABTABOARD OF DIRECTORSFounded in 1973, the American Brain Tumor Association(ABTA) was the first national nonprofit advocacyorganization dedicated solely to brain tumors. For over 45years, the ABTA has provided comprehensive resourcesthat support the complex needs of brain tumor patientsand caregivers, as well as the critical funding of researchin the pursuit of breakthroughs in brain tumor diagnosis,treatment and care.Jim Reilly, ChairTo learn more, visit www.abta.org. For help, resources orto find out how you can get more involved, call 800-886ABTA (2282) or email us at info@abta.org.Susannah DavisBrandon Starkoff, Vice ChairRam Subramanian, TreasurerCarla Varner, SecretaryBrian Olson, CFP ,Immediate Past ChairBob KruchtenJacqueline LemkeOUR MISSIONThe mission of the American Brain Tumor Association isto advance the understanding and treatment of braintumors with the goals of improving, extending and,ultimately, saving the lives of those impacted by a braintumor diagnosis.We do this through interactions and engagements withbrain tumor patients and their families, collaborations withallied groups and organizations, and the funding of braintumor research.OUR VISIONA future where not one life is lost to a brain tumor.CONNECT WITH US800-886-1281info@abta.orgCareLine: 800-886-22828550 W. Bryn Mawr Ave., Suite 550Chicago, IL 60631Mindee PluguesPRESIDENT AND CEORalph DeVittoCO-FOUNDERSSusan Netchin KramerLinda Gene Goldstein
Department of Radiation Oncology Co-Director, Brain and Spine Tumor Center Laura and Isaac Perlmutter Cancer Center NYU Langone Health Sylvia C. Kurz, M.D., Ph.D. Assistant Professor of Neurology, Hematology and Medical Oncology Neuro-oncologist, Brain and Spine Tumor Center Laura and Isaac Perlmutter Cancer Center NYU Langone Health
