Guidance And Best Practices For Stakeholder Participation In Health .

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Guidance and Best Practices forStakeholder Participation in Health Impact Assessments-Version 1.0 -Prepared by:Stakeholder Participation Working Group of the 2010HIA of the Americas WorkshopMarch 2012

Authorship:This document was drafted, reviewed, and revised by a working group including the following individuals:Cathleen Baker, Get Healthy San Mateo County Task Force, a community partnership of the SanMateo County Health SystemMegan Gaydos and Jennifer McLaughlin, San Francisco Department of Public Health *Kim Gilhuly, Human Impact PartnersNicole Iroz Elardo, Portland State UniversityShireen Malekafzali, PolicyLinkAme-Lia Tamburrini, Habitat Health Impact ConsultingKara VonasekSteve White, Oregon Public Health Institute*The views expressed herein do not necessarily reflect the official policies of the City and County of San Francisco; nor doesmention of the San Francisco Department of Public Health imply its endorsement.Suggested Citation:Stakeholder Participation Working Group of the 2010 HIA in the Americas Workshop. Best Practices forStakeholder Participation in Health Impact Assessment. Oakland, CA, October 2011.Main Contact: Kim Gilhuly, Human Impact Partners, kim@humanimpact.org, (510) 452-9442 x104.Acknowledgments: This document came to fruition because of the collaboration and hard work of manyindividuals. First, we would like to thank the original members of the HIA in the Americas ―EngagingStakeholders in HIA‖ workgroup, which convened on March 25 and 26, 2010, in Oakland, CA. The discussionsheld during the two-day workshop inspired the creation of this document, which undoubtedly containsinformation and perspectives that were shared by people who are not listed as authors. Additional members ofthe Engaging Stakeholders in HIA Subgroup include:Julie Early Alberts, Oregon Department of Human ServicesLiz Hodges Snyder, University of Alaska, AnchorageHolly Avey, Georgia State UniversityEmily Piltch, University of New Mexico Prevention Research CenterJonnie Hyde, Clark County (WA) Department of Public HealthJennifer Boyce, Wisconsin Department of Human ServicesGladys Rowe, University of ManitobaSecondly, we are grateful to all those who reviewed this document and contributed writing and guidance;special thanks go to Aaron Wernham, Lili Farhang, Rajiv Bhatia, Tia Henderson, Kalima Rose, HeatherTamir, Jana Cranmer, and Chinh Tran.Photos courtesy of Wing Huie.Best Practices for Stakeholder Participation in Health Impact Assessments – March 2012Stakeholder Participation Working Group of the 2010 HIA in the Americas Workshop

Table of ContentsA. Preface . 1B. Introduction . 2C. Understanding Stakeholder Participation . 3Who Are Stakeholders? . 3Why Is Stakeholder Participation Critical? . 4Levels of Stakeholder Participation . 7How Stakeholders Can Get Involved . 8C. The Participation Process. 10Sample HIA Participation Guide . 11Factors That Influence Participation . 17Pitfalls to Avoid in Engaging Stakeholders . 23D. Stakeholders Can Make a Difference: Four Examples of What Works . 25I. San Francisco, Eastern Neighborhoods Community Health Impact Assessment (ENCHIA) . 25II. Health Impact Assessment of HB 2800: Farm to School and School Garden Policy . 28III: Alaska North Slope Oil Exploration HIA . 31IV: Health Impact Assessment of the Crossings at 29 th Street in Los Angeles . 35APPENDIX A: Categories of Stakeholders . 38APPENDIX B: Approaches and Tools for Engagement . 42APPENDIX C: Stakeholder Best Practices Documents Reviewed for This Paper . 45GLOSSARY . 47ENDNOTES . 49

PrefaceGuidance and Best Practices for Stakeholder Participation in Health Impact Assessments primarilytargets health impact assessment (HIA) practitioners who are working to improve stakeholderparticipation and leadership in the practice of HIA. It may also appeal to community groups andstakeholders who want to more effectively participate in, lead, or influence an HIA.This guide is a collective product of the Stakeholder Participation Working Group, which emerged fromthe second HIA in the Americas Workshop that convened in Oakland, California, in March 2010. Theworking group was one of several formed around a variety of issues, and its goal was to increase theeffectiveness of stakeholder participation in HIAs1.This guide distills stakeholder participation techniques, case studies, and guiding principles from variousfields of expertise, including HIA, environmental and social impact assessment, land use andtransportation planning, community-based participatory research, and public health. It was informed by ahost of materials that can be found in Appendix C. This document also draws on the expertise andexperiences of the members of the Stakeholder Participation Working Group.This is a living document that will be updated as new information becomes available.1This paper is one of many guidance and standards documents that emerged from the second Health ImpactAssessment in the Americas Workshop in 2010. These other documents can be found online atwww.sfphes.org/HIA Tools/HIA Practice Standards.pdf and http://www.humanimpact.org/resources.Best Practices for Stakeholder Participation in Health Impact Assessments – March 2012Stakeholder Participation Working Group of the 2010 HIA in the Americas Workshop1

A. IntroductionMany proposed policies and projects are analyzed for fiscal and environmental impacts prior to beingadopted, which helps decision makers anticipate the consequences of their decisions. However, theimpact on the health and well-being of populations is often overlooked.Ensuring the inclusion ofFilling this gap are Health Impact Assessments (HIAs). HIAs are defined as1stakeholder participationa combination of procedures, methods, and tools that systematically judgeand leadership in HIA helpsthe potential, and sometimes unintended, effects of a policy, plan, program,promote a vision of anor project on the health of a population—and the distribution of those effectsinclusive, healthy, andwithin the population. HIAs identify ways to alleviate and mitigate anyequitable community.negative effects and maximize positive outcomes.Stakeholder participation is an important component of the HIA process. Broad inclusion of stakeholdersenhances the expression of HIA core values: democracy, equity, sustainable development, and ethicaluse of evidence, as described by the World Health Organization. Ensuring stakeholder involvement andleadership helps promote a vision of an inclusive, healthy, and equitable community, in which allpeople, regardless of income, race, gender, or ability, can participate and prosper. In such communities,positive health outcomes are equitably distributed; low-income people, communities of color, and othervulnerable populations have access to the opportunities necessary to thrive; and the democratic processempowers all to participate in the decision-making processes that impact their lives.In addition to promoting inclusive, healthy, and equitable communities, stakeholder participation canimprove the efficacy of an HIA by helping to:identify important stakeholder concernsbring important reflections of experience, knowledge, and expertiseground truth findings and recommendations by ensuring that the lived reality matches priorities,data, and analysissupport the value of equity and democracy within the HIAcreate more support for the implementation of HIA recommendationsshape communication and dissemination methodsThis document, by providing resources and examples, shows HIA practitioners how to effectively andmeaningfully involve diverse stakeholders at every stage of an HIA. It can also serve as a guide forcommunity-based organizations or other stakeholders to understand the various windows of opportunityfor stakeholder leadership and participation.In the following pages, practitioners will find (1) a description of stakeholder groups, (2) opportunities forparticipation at each step of an HIA, (3) a list of factors that influence participation, and (4) case studiesthat incorporate community participation in recent HIAs. The strategies discussed in this document arenot exhaustive, nor do they guarantee successful stakeholder participation. Rather, they are intended toinform HIA practitioners about current best practices for achieving and promoting meaningful involvementof key stakeholders in an HIA.Best Practices for Stakeholder Participation in Health Impact Assessments – March 2012Stakeholder Participation Working Group of the 2010 HIA in the Americas Workshop2

B. Understanding Stakeholder ParticipationWho Are Stakeholders?Stakeholders are individuals or organizations who stand to gain or lose from a decision or process. Morespecifically, stakeholders can be defined as people who:are affected by the prospective change (e.g., health or financial)have an interest in the health impacts of the policy or project under considerationbecause of their position, have an active or passive influence on the decision-making andimplementation process of the project or policy under considerationhave an economic or business interest in the outcome of the decisionIn practice, stakeholders are often thought of in terms of categories of people—sometimes referred to as―communities of place‖ or ―communities of interest.‖ Below is a common set of stakeholder categories:Community-based organizationsResidentsService providersElected officials at the municipal, regional, state/provincial or federal levelsSmall businessesIndustry, developers, and big businessPublic agenciesStatewide or national advocacy organizationsAcademic, learning and research institutionsHIA consultant organizationsIt is recommended that an HIA practitioner engage with more than one of these stakeholder groups onany given assessment. Diversity in stakeholder participation allows for a well-roundedunderstanding of the community and political realities related to the policy, project or programbeing examined.It is important to note that HIAs typically involve stakeholders affiliated with organizations rather thanindependently engaged residents or individuals representing only their personal interests. An HIA reliesheavily upon organizations to represent the multiplicity of public interests. Typically, each group ororganization that has a stake in the process or outcome should be contacted and asked to participate inthe process. A common goal is to have a representative from each stakeholder group. The pool ofrepresentatives should be a fairly accurate reflection of theWith the diversity of interests, reach,greater public interest.capacities, and cultures among potentialStakeholder participation is most successful when all groupsstakeholders, no single approach can beand interests are able to meaningfully influence the processprescribed for stakeholder participation.This document encourages thatand outcome. In practice, it may be difficult to include everyonestakeholder participation be maximizedsince it can be challenging to align groups with differentto the greatest extent possible in orderinterests, needs, abilities, resources, and histories. A seasonedto achieve more effective and equitablefacilitator can help identify who should be involved, sort throughHIA results.the challenges associated with including each group, manageinterpersonal relationships once all stakeholders are together,and pave the way for including decision makers at critical points in the process. Appendix A also providesinformation that may be helpful in identifying stakeholders.Best Practices for Stakeholder Participation in Health Impact Assessments – March 2012Stakeholder Participation Working Group of the 2010 HIA in the Americas Workshop3

Due to the centrality of equity to the HIA and the challenges associated with organizing vulnerablecommunities, special attention must be paid throughout the process to those representing vulnerablepopulations, including low-income people, communities of color, people with disabilities, children, andseniors. Many HIAs include organizations with strong ties to the community and increased capacity toengage community members on key objectives and participate with broader constituencies. Throughcommunity-based organizations, residents can:provide valuable inputbuild individual and organizational capacityprovide community outreach resourcesserve as sources of quantitative and qualitative datahelp ground truth findingscontribute political connections important to an HIA‘s successcontribute financial and in-kind resourceshelp create ―buy-in‖ for how results are usedIn turn, an HIA helps organizations develop institutional capacity to consider health in future policy andproject efforts.Because representatives from anorganization will likely be loyal to theorganization‘s core mission andagenda, it is important to exercisecaution in determining eachorganization‘s representation andaccountability to the vulnerablepopulations for which it speaks. Thisis also another reason to ensureparticipation by a diverse range ofstakeholders.Why Is StakeholderParticipation Critical?Stakeholder participation andleadership is an integral part of theHIA process. Such participationsupports empowerment andcapacity-building, particularly amongvulnerable populations, whichinclude low-income people andcommunities of color; this in turnmaximizes health outcomes. Publichealth research shows that citizenswho are more civically engaged andthose who feel a sense of controlover the decisions that impact theirlives experience better healthCase Study: Los Angeles ACORN, a local community-basedorganization, spearheaded an HIA of a housing development in SouthLos Angeles in a low-income community. The HIA looked at the healthimpacts of affordable housing and access to vital healthy goods andservices such as healthy food, public transit, education, parks andrecreation facilities, and neighborhood walkability. There wasintensive community involvement via a 300-person survey andcommunity reporting of HIA findings to city council members. LADepartment of Public Health, the Redevelopment Authority, and thenonprofit developer also participated in the HIA. The HIA andstakeholder participation led to the developer agreeing to lower thecost of the housing units to match what was considered “affordable”in the lower-income sub-area of South Los Angeles. See Section D, partIV for more details on this example.Best Practices for Stakeholder Participation in Health Impact Assessments – March 2012Stakeholder Participation Working Group of the 2010 HIA in the Americas Workshop4

2outcomes. Successful stakeholder participation can lead to a more informed, empowered andcontinuously engaged base.Indeed, stakeholder participation aims to exemplify each core value of an HIA as defined by the World3Health Organization. The way in which stakeholder engagement supports each value is outlined in Table 1.Table 1. How Stakeholder Participation Supports the Core Values of HIAHIA Core ValueWHO Definition*How Stakeholder ParticipationContributes to the Core Values of HIADemocracyEmphasize people‘s rights to participate ina transparent process for the formulation,implementation and evaluation of policiesthat affect their lives, both directly andthrough the elected political decisionmakersEnsures stakeholders—particularly thosewho are disenfranchised from the politicalprocess—are a part of decision-makingprocesses that impact their lives; providesan opportunity for stakeholders to voicetheir concerns and solutions; and buildsstakeholder capacity to become involvedin future decision-making.EquityEmphasize that an HIA is not onlyinterested in the aggregate impact of theassessed policy on the health of apopulation but also on the distribution ofthe impact within the population, in terms ofgender, age, ethnic background andsocioeconomic statusAllows people who might be impacted tohave their needs represented in thedecision-making process, contributes toreduced health inequities and promotesequitable decision-making.SustainableDevelopmentEmphasize that both short-term and longterm, direct and indirect impacts must betaken into considerationStakeholders can present issues thatreflect the needs of both the current andfuture community (services, traffic, etc.).Ethical Use ofEvidenceEmphasize that the use of quantitative andqualitative evidence needs to be rigorousand based on different scientific disciplinesand methodologies to get a comprehensiveassessment of the expected impactsInformation collected from stakeholdersshould be valued as evidence. Groundtruthing scientific data with variousstakeholders helps validate professionalinformation.* From European Centre for Health Policy. Health Impact Assessment: Main Concepts and Suggested Approach. 1999.World Health Organization Regional Office for Europe.The Benefits of Engaged and Active StakeholdersIn the HIA process, engaged and active stakeholders can:Increase the accuracy and value of the HIA by providing multiple perspectives. Workingwith stakeholders brings varying perspectives to the HIA and is integral to identifying the healthimpacts that are of greatest importance to the population identified in the HIA. Through theparticipation process, the knowledge, experience and values of diverse stakeholders can becomepart of the evidence base.Incorporate information not readily available with other forms of evidence. Stakeholderscan share anecdotal information, histories and stories that provide a more well-roundedunderstanding of existing community conditions and potential health impacts. Stakeholders canalso help refine research questions, support context-specific analysis of research findings, andhelp develop more feasible recommendations.Best Practices for Stakeholder Participation in Health Impact Assessments – March 2012Stakeholder Participation Working Group of the 2010 HIA in the Americas Workshop5

Increase the efficacy of the HIA to impact the policy decision by fostering active supportfor the HIA recommendations. Participation in the HIA process can provide stakeholders anopportunity to shape the analysis and provide meaningful input. Stakeholders can account forcommunity concerns and visions, political realities, and reach diverse audiences for input andsupport. Since the recommendations stemming from the HIA analysis may also have the mostimpact on communities and other stakeholders, it is imperative they help shape them.When stakeholder participation is successful, community and advocacy groups can use the HIA results toadvocate for the recommendations of the HIA and reach decision makers to influence key opportunities.This increases the likelihood of implementation. For example, community groups can develop campaignsand organize constituencies to advocate for the recommendations of the HIA. Stakeholder support oropposition can be an important factor in determining the success or failure of a policy, project, orprogram.In order to inform an HIA, expandgood practice, and increase thefeasibility of an effectiveimplementation of finalrecommendations, it is important toengage diverse perspectives. At thebare minimum, HIA practitioners areadvised to involve a wide variety ofstakeholders in the HIA at eachstage; if carried out to its maximumpotential, stakeholder participationcan result in a more successful HIA,increased democratic processes andempowered communities.Case Study: Launched in fall 2004, the Eastern NeighborhoodsCommunity Health Impact Assessment (ENCHIA) was an 18-monthlong process to assess the health impacts of the proposed re-zoningand community planning process in Eastern Neighborhoods.Facilitated and staffed by the San Francisco Department of PublicHealth, ENCHIA was guided by a multi-stakeholder CommunityCouncil of over 20 diverse organizations representing a multitude ofinterests including economic and neighborhood development,environmental justice, homelessness, open space, property-owners,and small businesses. ENCHIA resulted in the insertion of healthprotective language in the Community Area Plans, health analysisduring the formal Environmental Impact Review, new city legislationrequiring air quality and noise mitigations for sensitive usedevelopment, and the creation of the Healthy DevelopmentMeasurement Tool. See Section D, part I for more information.The benefits of broad involvementand leadership extend beyond therecommendations of the HIA.Current practice standards, guidanceand peer-reviewed literature for HIA,other forms of impact assessments,and public planning recognize thatmeaningful and effective stakeholderparticipation supports effectivedecision-making. Stakeholderparticipation does not only inform theHIA, it also benefits the communityand decision makers.Best Practices for Stakeholder Participation in Health Impact Assessments – March 2012Stakeholder Participation Working Group of the 2010 HIA in the Americas Workshop6

Levels of Stakeholder ParticipationThe quality of stakeholder participation can vary widely. Sherry R.Arnstein‘s Ladder of Citizen Participation (Figure 1), a framework often4utilized in studies of equity and civic engagement, was published in 1969.It remains a valid framework to describe the spectrum of engagement—from input to empowerment—and to prescribe participation goals andmethods. Although not explicitly used in an HIA, it is presented as apotential tool to help conceptualize and gauge stakeholders‘ desired levelsof participation in HIA practice.Arnstein‘s ladder also helps evaluate the goal of community empowermentin HIA; results should be evaluated by how changes were achieved and atwhich level engagement took place on the Ladder of Citizen Participation.Evaluating empowerment calls for collecting data on stakeholders‘experience with the HIA process and their sense of personal power,accountability, connectedness, vision, etc. This is just one exampleFigure 1. Arnstein's Ladder of Citizenof how participation goals can shape how practitioners plan,Participationimplement, and evaluate participation and overall success of the HIA.Table 2. Ladder of Citizen Participation Applied to HIA PracticeRungArnstein’s Description2Applied to HIA PracticeCitizen Control & Vulnerable populations most impacted obtain HIA stakeholders, including vulnerableDelegated Power majority decision-making power.populations, decide on the HIA scope andrecommendations, have final approval of HIAreport, and decide on the communicationsstrategy.PartnershipVulnerable populations can negotiate andengage in trade-offs with power holders.Stakeholders impact the direction of HIA (scope)and reporting, but decisions are made equallywith project team.PlacationAllows vulnerable populations to advise, butpower holders have right to decide.Stakeholders offer input that may shape the HIA,but the project team make all decisions.Informing &ConsultationCitizens can offer input and be heard, with no Stakeholders offer input but it does notnecessarily shape the HIA.assurance their views will be taken intoaccount.Manipulation &TherapyPower holders ―educate‖ or ―cure‖ citizens— Telling stakeholders what is happening withoutparticipation is not encouraged.soliciting input. Saying stakeholder voices matterbut not acting on input. Not giving out all relevantinformation or giving different information todifferent stakeholders.The rungs of Arnstein‘s ladder also fit nicely into a framework for understanding best practices forstakeholder participation in HIA (Table 2). As noted, there are varied ways to effectively engage thebroader community groups and stakeholders at different levels but at minimum, HIA practitioners shouldseek to achieve participation at the Informing and Consultation rungs or higher.2Authors took liberty to change Arnstein‘s use of the term ―have not‖ and replace it with ―vulnerable population.‖Best Practices for Stakeholder Participation in Health Impact Assessments – March 2012Stakeholder Participation Working Group of the 2010 HIA in the Americas Workshop7

How Stakeholders Can Get InvolvedOne of the primary products of the first HIA in the Americas Workshop (2009) was a ―Minimum Elementsand Practice Standards for HIA‖ (HIA Practice Standards) document,3 which was designed by leadingNorth American HIA practitioners to support the development and institutionalization of HIA by identifyingthe values underlying HIA, the essential elements of a HIA, and best practices to conduct a HIA. 5 Asnoted in these standards, "there exists considerable diversity in the practice and products of HIA due to6the variety of decisions assessed, diverse practice settings, and the nascent evolution of the field.‖ Thisset of conditions also applies to stakeholder participation in HIAs. With the diversity of interests, reach,capacities, and cultures among potential stakeholders, no single approach can be prescribed forstakeholder participation. This document advocates maximizing stakeholder participation foreffective and equitable results, and acknowledges that limited resources, capacities and quickpolitical timelines pose limits on stakeholder participation.The HIA Practice Standards also suggests that stakeholder participation in HIAs should include ―aspecific engagement and participation approach that utilizes available participatory or deliberativemethods suitable to the needs of stakeholders and context.‖ Such methods may include, but are notlimited to: creation of community steering or advisory groups, co-partnership with key stakeholders,consensus-based decision-making, interviews, surveys, questionnaires, fishbowls, comment forms,project website, articles, newsletters, workshops, tours, design charrettes, focus groups, and studysessions. The standards broadly encourage practitioners to ―accept and utilize input‖ at a very minimum.In addition, the HIA Practice Standards identifies a seriesof opportunities at each stage of HIA where stakeholderscan shape and influence the process and outcomes.7Table 3 summarizes these opportunities. When maximizedat each stage, stakeholder guidance and input has thepotential to shape the issues that are scoped into the HIA,the values prioritized, and the stakeholders engaged in theprocess. Stakeholders share local knowledge andexpertise on early drafts of HIA documents, frame the dataaround local realities, provide comments and feedback onthe final report, and help identify recommendations.Table 3 summarizes the Practice Standard‘s essential and recommended standards related tostakeholder participation. The right-hand column references where the identified standards can be foundin the Practice Standards document.3Practice Standards were updated after the HIA of the Americas Conference 2010, and will continue to be updatedas practice develops. The Stakeholder Participation in HIA Working Group has included additional practices in Table2 to reflect enhanced engagement.Best Practices for Stakeholder Participation in Health Impact Assessments – March 2012Stakeholder Participation Working Group of the 2010 HIA in the Americas Workshop8

8Table 3: North American HIA Practice Standards Relating to Stakeholder Participation by HIA StageHIA Standards for PractitionersProcess Oversight:Intended to be used throughout all the stages of the HIAEssential Accept and utilize diverse stakeholder input.Recommended Have a specific engagement and participation approach that utilizes available participatory or deliberative methods suitable to the needs ofstakeholders and contextScreening Stage:Deciding whether an HIA is needed, feasible, and relevantEssential Understand stakeholder concerns in order to determine potential health effects. Identify and notify stakeholders of decision to conduct a HIA.Recommended Identify stakeholders to potentially partner with a HIA. Seek diverse stakeholder participation in screening the target policy or HIA plan.Scoping Stage:Deciding which health impacts to evaluate and evaluation methodology Use input from multiple perspectives to inform pathways (between the policy, plan or project and key health outcomes). Use multiple avenuesEssentialto solicit input (from stakeholders, affected communities, decision makers).

Best Practices for Stakeholder Participation in Health Impact Assessments - March 2012 Stakeholder Participation Working Group of the 2010 HIA in the Americas Workshop 3 B. Understanding Stakeholder Participation Who Are Stakeholders? Stakeholders are individuals or organizations who stand to gain or lose from a decision or process. More