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INSIGHT E-NEWSLETTERApril 2022FACES GALA IS BACK!By Emma QuadraOn May 3, 2022 FACES (Finding a Cure for Epilepsy andSeizures) will host an in-person gala at Pier Sixty at ChelseaPiers in New York City to celebrate the strength, resilienceand generosity of the FACES community.The FACES gala is FACES biggest fundraiser of the year. Thefunds raised by the FACES gala will support epilepsyresearch, FACES programs, services and enhance the clinicalcare of epilepsy patients.This year's gala will be emceed by Seth Meyers, EmmyAward-winning writer, New York Times bestselling authorand host of NBC's, "Late Night with Seth Meyers." Meyersjoined us in 2018 and presided over a fantastic evening. Weare excited to welcome him back to the FACES gala stage.The evening will begin with cocktails and a silent auctionoverlooking the Hudson River at sunset, followed by dinner,guest speakers and a live auction. Among this year's specialguests will be Amanda Seyfried, critically acclaimed actorand star of many cultural mainstays such as "Mean Girls,""Mamma Mia," "Les Miserablés" and most recently Hulu's hitshow,"The Dropout."In This IssueFACES GALA 2022HALF MARATHONWELCOME NEW FACESPEACE OF MIND LECTURE RECAPCAMP AND COLLEGESCHOLARSHIPEPILEPSY CONFERENCEANNOUNCEMENTCOMMUNITY SPOTLIGHTPURPLE SPOONIN THE NEWS

AUGUST 2019VOL. 29PHOTO BY MARTIN R. SMITHcontinued from previous pageOn this occasion, we will honor Angela and MattStone. Matt Stone is an actor, producer andcomposer known for co-creating South Park and TheBook of Mormon. Angela and Matt are advocates forFACES and are leaders in the FACES community.The gala chairs are Alessandro Borgognone andDaisuke Nakazawa. The auction chairs are JackieHarris and Allyson and Andrew Wiener. The gala isgenerously underwritten by Leah and MichaelWeisberg.For more information and ticketing options, pleasevisit our online giving -galaCOVID Guest GuidelinesPer Pier Sixty’s guest and client vaccination policy, all gala attendees are required to be fully-vaccinated. Both a photoID and proof of vaccination, which may include the New York State Excelsior Pass, NYC Covid Safe, CDC VaccinationCard (or photo) or an official immunization record from outside NYC or the U.S., must be presented at the event.Please note that requirements are subject to change, and may be updated as the event gets closer.

TeamFACES Half Marathon HighlightsCongratulations TeamFACES! The United AirlinesNYC Half Marathon came back stronger than everthis year. On Sunday, March 20, four TeamFACESathletes hit the pavement and completed the 13.1mile race, raising over 35,000. A huge thank youto Corey Deutsch, Grace Hauck, Courtney Lipsonand Lauren Wolf for your dedication and support ofFACES and our mission.You can still support our athletes!Corey Deutsch, LaurenWolf and Courtney LipsonLauren Wolf andCourtney LipsonVisit the TeamFACES Half Marathon fundraisingpage eshalfGrace Hauck and Family

Welcome Emma!A new year brought in a new face to the FACES team. Emma Quadra isour new Project Coordinator. Emma worked in sales and marketing inthe education technology industry for over 5 years and has an extensivebackground in social media, email marketing and website development.She will be overseeing FACES' social media, engaging with the FACEScommunity and providing support to FACES programs and services.Emma graduated from California State University, Northridge with aB.A. in Journalism/Public Relations and is currently pursuing a Mastersin Finance at Fordham University. In her free time she loves traveling,cooking and biking around New York City. Emma is excited to join theFACES team and is looking forward to meeting and working with theincredible FACES community.

Peace of Mind Lecture RecapEpilepsy and Social IssuesOn January 25, Santoshi Billakota, MD spoke about theissues that can affect epilepsy care and functioning ofpeople with epilepsy from work and school to interpersonalrelationships. She touched upon strategies to navigatesome of the more challenging situations.Keto 101 for Pediatric Patients with EpilepsyOn February 28, Georgia Burlison, MS, RD spoke about Keto as apotential dietary therapy for the treatment of epilepsy inpediatric patients. She discussed the initiation and therapy,similarities and differences between the various diets, sideeffects, and examples of ketogenic foods. At the end of thelecture, Georgia gave us a demo of a delicious keto approvedShamrock smoothie!Candidacy for Epilepsy Surgery and Epilepsy SurgicalInterventionsOn April 31, Patricia Dugan, MD spoke about identifyingcandidates for neurosurgical intervention of treatmentresistant epilepsy and discussing the components of acomprehensive presurgical evaluation. She covered thedifferent types of neurosurgical techniques for identifying andtreating seizures including intracranial EEG monitoring withsubdural electrodes and stereo-EEG, surgical resection, laserablation. She also discussed the available neurostimulationtechnologies that are approved to treat refractory epilepsy:vagus nerve stimulation, responsive neurostimulation, anddeep brain stimulationMissed a lecture? To view all past Peace of Mind Lectures, please ce-mind-lecture-series

FACES SCHOLARSHIPS ARE NOW OPEN!The FACES College scholarship and the Dr. Blanca VazquezSummer Camp scholarship accepting applications. FACES isproud to provide partial financial assistance to students andchildren with epilepsy.College ScholarshipApplication ge-scholarshipprogramCamp ScholarshipApplication lanca-vazquezsummer-camp-scholarshipAPPLICATION DEADLINE: June 27, 2022APPLICATION DEADLINE: May 23, 2022Award Notification date: mid-late JulyAward Notification date: June 17, 2022All applicants must experience epilepsy and seizures.Please visit the application link for more details and eligibility.For questions, please contact FACES Project Coordinator: Emma Quadra at(646)558-0820 or facesscholarship@nyulangone.org

Hear From Our Previous Scholarship RecipientsEvery year, FACES provides partial financial assistance to studentsand children with epilepsy. The Dr. Blanca Vasquez Summer CampScholarship gives children the opportunity to attend a summercamp of their choice and allows them to experience fun, confidencebuilding activities. The College Scholarship awards college studentswith epilepsy funds to help celebrate their accomplishments andinspire them to achieve their dreams. Hear from previous winnersabout how receiving the scholarship has benefited them.Wyatt Fortgang2021 Camp Scholarship WinnerWyatt is a student at Montclair University majoring inFilm and Television. For Wyatt, the camp scholarshipgave him the opportunity to explore his interests atvarious summer camps which eventually led him to hispassion in filmmaking, “FACES helped me get involvedwith Verona Summer Music back when I played thetrumpet and then percussion. I also participated in thetheater part of the music camp. I did stage crew, where Ibuilt sets and rehearsed scene changes and curtaincloses while taking care of middle school kids.I enjoyed being involved because I would hangout with high school friends Ialready knew over the summer thanks to FACES. Later I got more interested inFilm that led me to NJ Film School where I was introduced to the basics offilmmaking. Another year, I took an Audio Engineering camp at William PatersonUniversity. As I grew more curious about film production, participated in theMontclair Film Education summer camp. I did multiple programs within theMontclair Film Education camps and now I’m a full-time student at MontclairState University, majoring in FMTV ( Film and Television ). Thank you, FACES.You’ve helped me find what I’d like to do with my life. “

Leah Santolo2021 College Scholarship WinnerLeah Santolo is freshman at MonmouthUniversity in New Jersey and is a healthstudies major in an occupational therapyprogram. Leah had seizures shortly after birthand was officially diagnosed with epilepsy at2 years old. “Growing up with epilepsy wasnot always easy. There were many times that Istruggled to feel like other kids and the fear ofhaving a seizure was never far from my brain.It has taken me years to adapt and to becontent in who I am and who I want to be.Although having epilepsy is part of me, itcertainly does not define me.”For Leah, the scholarship helped her afford her dream school with herdesired major and program. Since starting school she has exceled inschool, and has a small job on the side. She’s also has met a lot of greatpeople who share common interests and goals. After graduating with herbachelor’s degree, she plans to get a doctorate degree in 2027. “I hope tobe able to help others that are living with epilepsy directly throughmedicine and by being a positive influence and role model to anyone whomay not meet society’s definition of normal. I could not have done itwithout my family, friends, and of course the FACES scholarship. "

STAY TUNED.FACES is planning the 2022 EPILEPSYCONFERENCE. More details to follow inthe next few weeks.Sign up for our mailing list in the link tostay up to date on future FACES events:http://faces.med.nyu.edu/mailing-list

COMMUNITY SPOTLIGHTIn this new series, we will feature a member of the FACES communitywho is doing extraordinary things. Our first spotlight is Delcie Halsey.Delcie’s son has been a long-time patient at the ComprehensiveEpilepsy Center. Delcie, a former speech pathologist at a hospital,started making jewelry for fun after she retired. “I saw my husbandand son wearing a necklace and said to myself, I can do that. I made anecklace for them and they said they like mine better,” she said.When designing her jewelry, she goes by what she likes and lovesusing colorful gems, butterflies, hearts and dragonflies. Delcie iscurrently not selling the jewelry, but has graciously donated it toFACES. “My son has had multiple surgeries at the center and I wantedto give back to the community because it has kept him alive,” saidHalsey. Thank you Delcie for sharing your wonderful story!

Strawberry Cheesecake Fat BombsIngredients342g FAT I 36g Protein I 32 Net CarbPREP TIME: 15 Minutes I COOK TIME: 10 minutesMACRONUTRIENT RATIO: 4.99:1 I Calories 3352132 grams (1Cup) macadamianuts, roasted140 grams (1 Cup) frozenstrawberries113 grams (1/2 cup) coconutbutter, melted113 grams (1 stick) butter, roomtemp226 grams (1 package) creamcheese, room tempDirections1. Combine all ingredients in a foodprocessor and blend until smooth. Youwill have to scrape the sides severaltimes.2. Spoon the mixture into silicone moldsand smooth the bottoms with a butterknife.3. Freeze until completely solid, thenremove and store in an airtightcontainer. Keep frozen and thaw forabout 5 minutes before eating.