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Awareness Week is just around the corner and we’ll once again be encouraging peopleto ask themselves ‘Is it coeliac disease?’ We need your help to achieve our aim ofreaching the estimated 500,000 undiagnosed people in the UK and it’s not too late to getinvolved.Reaching half a million people on social mediaIt just takes five minutes to help us spreadthe word online – signing up to ourThunderclap campaign couldn’t be easier.After you’ve pledged your support, a socialmedia status featuring our key ‘Is it coeliacdisease?’ message is sent out from youraccount at the same time as everyone elsewho has pledged. When we all speaktogether, we can make a bigger impact, sosign up now to pledge your support. We areso close to reaching 500,000 people – yourpledge could make all the difference.Help us reach as many people as possible, sign up to ourThunderclapOr if you’re feeling creative, then why nottake a selfie describing your symptoms?They say a picture paints a thousand words,so order a selfie frame now and get snapping!
After you’ve uploaded your picture to socialmedia with #isitcoeliacdisease, we’ll shareour favourites on Twitter and Facebook.National Coeliac UK Leafleting DayOn Saturday 14 May, our brilliant Coordinators andLeafleteers will be taking to high streets up and down thecountry to spread the word about coeliac disease. Withsupport from Marks & Spencer offering up its storesthroughout the UK as leafleting locations, there’s probablysomething going on near you – keep an eye out!Pop up eventThroughout Awareness Week we’ll be holding a pop up eventin central Manchester, where we’ll be talking about thesymptoms of coeliac disease, handing out leaflets andoffering on the spot testing to those at risk.You can find us at Piccadilly Gardens Area A WellingtonStatueHave any questions? Then don’t hesitate to get in touch atawarenessweek@coeliac.org.uk or on 01494 796129.Read more in:NewsEventsGF accreditationWin a pair of tickets for the BBC Summer in the CityShowThe show is a great day out with a special Free Fromarea and offers you the opportunity to see your favouritecelebrity chefs cooking live on stage, find out more abouteating well, visit the Coeliac UK stand to chat with one ofour dietitians and team about any questions you haveabout your diet and health, and browse, sample and shopfrom hundreds of exhibitors.We have four pairs of tickets to give away to ourMembers. Tickets are valid for Friday 20 May ORSunday 22 May 2016 at Excel London.
Enter our prize draw to win a pair of free tickets to theshow, simply provide us with your name, address andMembership number* and your number one tip forcooking and baking gluten free** by 5pm on Thursday 12May. Four lucky winners will be drawn at random onFriday 13 May at 12.00 noon.*Please note to enter you need to be a current Member of CoeliacUK.**Cooking and baking tips will be shared on website, social mediaand marketing material.Enter the prize draw!Update on gluten free prescribingCoeliac UK believes cutting prescriptions for those who havebeen diagnosed with coeliac disease will leave vulnerablepatients without support, and affect their ability to stick tothe gluten free diet. We are keeping up the fight for gluten free prescribing but we are seeing some more consultationsand decisions coming through. In all cases Coeliac UKformally responds to the consultations in support ofcontinuing to provide gluten free food on prescription. Wehighlight the need for a level of support for people withcoeliac disease due to the higher cost of gluten free staplefoods and the limited availability in rural areas and smallerconvenience stores and we focus on research which showsthat gluten free staple foods are not readily available topurchase in budget supermarkets and corner shops and thatgluten free staple foods are 3 4 times more expensive thangluten containing equivalents.This month we have updates regarding:Cambridgeshire and Peterborough CCG consultationuntil 24 MayWorcestershire consultation until 30 MayNottingham North and East CCG, Nottingham WestCCG and Rushcliffe CCGMansfield and Ashfield CCG and Newark andSherwood CCG.Please keep us updated on any changes you experiencelocally.Stay up to date with allergy alertsThe Food Standards Agency is improving its free servicewhich communicates allergy alerts, via email or texts, lettingyou know when a food product is recalled if it is consideredan allergy risk.You can personalise the service, by choosing which of the
top 14 allergens that you would like to receive alerts about.Foods are usually recalled or withdrawn from sale becausesomething has happened in the manufacturing process andthey should not be sold, either because the food is unsafe orbecause the labelling is incorrect.You can sign up for the free service, or amend yourpreferences on the Food Standards Agency website.We also highlight food alerts relating to gluten and thosespecific to gluten free products in our food alerts service onour website and on our app. Food alerts are also sent out aspush notifications on our mobile app Gluten free on theMove. Visit www.coeliac.org.uk/app for more information onhow to download it.Call for volunteers aged 18 to 30Gluten free Under Thirties (GUTs) has teamed up withCamden Market Gluten Free Festival on 14 15 May to run anextra special Awareness Week event.The Group will be hosting a stall and talks at the festival,and will be holding a party for all GUTs Members on theSaturday afternoon.GUTs is looking for volunteers to help out on the stall at thefestival for one or two 3 hour slots. It is a great opportunityto meet other Members, raise awareness about coeliacdisease, develop your skills and have fun!Email Fearon at guts@coeliac.org.uk to sign up as avolunteer, and keep an eye on their Facebook page for moreinformation!The Allergy & Free From Show London 2016 Sponsoredby Udi’s Gluten FreeThis year’s show is even bigger and better than before. Thisthree day Free From extravaganza is taking place fromFriday 8 Sunday 10 July at London Olympia’s Grand Hall.We are thrilled to be part of the show once again and hopeyou are able to join us. The show offers you the chance totry and buy a wide range of gluten free foods, chat to gluten free manufacturers, attend a range of talks on a variety ofsubjects including coeliac disease and the gluten free dietand meet members of the Coeliac UK team at stand A447.The show is a great day out for the whole family and we areoffering fee tickets. To claim your free tickets,visit www.allergyshow.co.uk/go/cuk ldn eXG.Please come along to one of Coeliac UK’s presentations tofind out more about coeliac disease and the gluten free diet:
Friday 8 JulyNew developments in coeliac disease and the gluten freediet, Ruth Passmore, Health Policy OfficerSaturday 9 JulyIs it coeliac disease?, Maria Tzanetou, DietitianSunday 10 JulyMyth busting the gluten free diet, Nicola Crawford Taylor,DietitianMake sure you keep your Food and Drink Directory up to date. Click tocheck for updates now.Gluten Attack. Is glutenwaging war on ourhealth?Phil Vickery’s essentialgluten freeMedia update forApril 2016Professor David Sanders isProfessor ofGastroenterology at theRoyal Hallamshire Hospitaland University of Sheffieldand brings us the latestevidence and researchfindings from his verypersonal journey into gluten.Phil Vickery has publishedthe latest instalment in hisgluten free cookbook range.With recipes ranging fromMultiseed bread rolls andleek and gruyere quiche tochocolate mousse tart andmaple and pecan cookiecreams, it has a recipe forevery occasion.Our media work is a big partof what we do to raiseawareness of coeliacdisease and the gluten freediet.Gluten Attack costs 13and can be purchasedonline or by calling ourMembership Helpline on0333 332 2033.The book is available fromus for 19; it can bepurchased online or bycalling our MembershipHelpline on 0333 332 2033.We're always working hardto secure pieces in thepress, see the latestmonthly round up of someof our key media coverage.
British 10k LondonLondon’s roads are closed for this entry levelrunning event. Why not take on the Capital insupport of Coeliac UK and join 25,000 otherrunners along cheerer lined streets?Every runner gets a Coeliac UK running vest,fundraising and training support, and we’ll bethere on the day to cheer you on.Find out more.Join us at NightriderGet in gear for a 60 or 100km night cycle atone of these iconic cities:LondonBristolLiverpoolThese challenging cycling events are a greatopportunity to cycle on relatively quiet roadsand see the sun come up as you cross thefinish line in support of Coeliac UK.Find out more.Our Annual Conference and AGMOn Saturday 2 July we’ll be at Bath Racecourse for ourAnnual Conference and AGM 2016. This is our annualevent where you get to hear updates from the Charity,connect with other Members and take part in all thingsgluten free.The venue offers great facilities including ample parkingand is well placed for those wishing to make the short tripinto the beautiful city of Bath too.Our popular dietetics clinics will be a feature of the dayand we have several speakers lined up. Huge thanks toour Local Groups, led by Ian Severn, Berkshire LocalVoluntary Group Organiser, for organising a gluten freefood fair which will run throughout the day. See ourwebsite for a list of exhibitors.Annual General MeetingThere will be lots going on at the AGM with the electionand re election of some of our Governors who play a keyrole in shaping the work of the Charity. Your AGM noticeis included in Crossed Grain and has more informationand biographies.
International Coeliac Day 16 May 2016With Awareness Week on the horizon, May is a hugelyimportant month for coeliac disease awareness in the UKand the same is true for the rest of the world. In Europe,as in the UK, the average time between the firstappearance of symptoms and diagnosis is over tenyears. Plus, in Europe, only it’s estimated that only 12 15% of people affected by coeliac disease actuallyreceive a diagnosis.This is direct contradiction to the World HealthOrganisation’s (WHO) statement that every person has‘the right to the highest attainable standard of health’,which for people with coeliac disease means a diagnosisas soon as possible. Therefore, on 16 May theAssociation of European Coeliac Societies (AOECS) andtheir Member Societies celebrate International CoeliacDay to raise awareness of missing diagnoses. Anyoneexperiencing symptoms can take our online assessmentat www.isitcoeliacdisease.org.uk to get advice aboutbeing tested. For more information about AOECS, pleasevisit www.aoecs.org.Eating out with confidenceWhen you see the Coeliac UK GF logo you know that therestaurant is adhering to our Gluten free standard. Thestandard covers all aspects of gluten free preparation aswell as ensuring training is in place so you can eat outwith confidence knowing that we've worked with thevenue.See the full list of organisations that have gained ouraccreditation on our website.About us Coeliac disease Gluten free diet and lifestyle Get involved Campaigns and researchFood industry professionals Healthcare professionalsNews Blog
We have four pairs of tickets to give away to our Members. Tickets are valid for Friday 20 May OR Sunday 22 May 2016 at Excel London. Enter our prize draw to win a pair of free tickets to the . festival for one or two 3 hour slots. It is a great opportunity to meet other Members, raise awareness about coeliac disease, develop your skills and .
