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2022 Virtual National Patient ConferenceConqueringSjögrenʼs TogetherThe 2022 Virtual National Patient ConferenceDelivered to you in the comfort of your own home!Friday, April 29th – 1:00 pm - 5:00 pm (EDT)Saturday, April 30th – 1:00 pm - 5:30 pm (EDT)This two-day online educational experience will help you understand the complexities of Sjögren’s so you cantake control of your health. Learn more about the disease from leading Sjögren’s experts to better managesymptoms you have today and issues you need to watch for in the future.Register online at www.sjogrens.org
“Conquering Sjögren’s Together”Friday, April 29, 2022 All times are Eastern Time1:00pm1:10pmWelcome and Opening Remarks3:00pmJanet E. ChurchSjögren’s Foundation President & CEOJanet E. ChurchSjögren’s Foundation President & CEOSjögren’s OverviewJanet Church will present the resultsfrom our recent patient survey, Livingwith Sjögren’s, as well as share currentFoundation updates.Daniel J. Wallace, MD, FACP, MACRDr. Wallace will present a comprehensivereview of Sjögren’s disease including therange of symptoms that patients experience.He will give special attention on issuesnot covered by other presentations andwill offer thoughts on treatment options,practical tips for managing symptoms,labs needed for best care, and when to add specialists to yourmedical team.Dr. Daniel J. Wallace is a Rheumatologist and Internist inBeverly Hills. He is the Director of the Lupus Clinic at CedarsSinai. Dr. Wallace also serves as a professor of medicine at theDavid Geffen School of Medicine at UCLA and the AssociateDirector of the Rheumatology Fellowship Program at CedarsSinai Medical Center. He is an Associate Member of theFoundation’s Medical & Scientific Advisory Board, Sjögren’sOMERACT and the FNIH Sjögren’s Committee. A key leader inSjögren’s, he is both the editor and author of multiple chaptersin the fifth edition of The Sjögren’s Book.2:00pmExploring Sjögren’s Spotlight2:10pmGastrointestinal Issues in Sjögren’sLucinda Harris, MDDr. Harris will discuss the differentgastrointestinal issues associatedwith Sjögren’s including dysmotility,gastroesophageal reflux disease,gastroparesis, irritable bowel syndrome, andmore. This session will help you understandhow to decipher your symptoms and get thecorrect care and treatment needed for best management.Dr. Lucinda Harris is a Gastroenterologist and Associate Professorof Medicine in the Division of Gastroenterology and Hepatologyat Mayo Clinic in Scottsdale, AZ. A current fellow with theAmerican Gastroenterological Association she has spent over30 years treating patients with digestive diseases includingSjögren’s. Throughout her career Dr. Harris has publishedextensively on IBS and other digestive diseases.2:50pmFoundation UpdateExploring Sjögren’s Spotlight3:30pmExploring Sjögren’s Spotlight3:40pmOcular Manifestations of Sjögren’sVatinee Y. Bunya, MD, MSCEApproximately 95% of Sjögren’s patientsexperience dry eye. Dr. Bunya will sharehow Sjögren’s impacts eyes and what youneed to know about caring for your dry eyes.Understand the tests that your doctor needsto perform and the available treatments tohelp keep your eyes as healthy as possible.She will also share what is on the horizon for dry eye therapy.Dr. Vatinee Bunya is the Co-Director of the Penn Dry Eye &Ocular Surface Center. She cares for patients with dry eye,Sjögren’s, and other disorders that affect the ocular surface.Dr. Bunya has extensive experience in the study of dry eye anddiseases that affect the ocular surface and eyelids. She also hasa special interest in the study of Sjögren’s. Dr. Bunya has beenthe principal investigator for several dry eye clinical trials andreceives funding from the National Eye Institute. She currently isworking to develop better ways to measure dry eye and to screenpatients for Sjögren’s.4:20pmProduct ShowcaseKimberly Kelley, PharmDSjögren’s patients use a number of overthe-counter and prescription productsto treat their various complications. Thissession, presented by Dr. Kimberly Kelley,will highlight an array of products that helpSjögren’s patients live more comfortably.Dr. Kimberly Kelley has been a Doctor ofPharmacy in Arizona for 35 years. She has had an expansivecareer as a Director of Pharmacy, Operations Manager for aSpecialty Pharmacy, Faculty Associate with the University ofArizona and Midwestern University Colleges of Pharmacy, and asa business owner providing Pharmaceutical Consulting acrossthe United States. She is a member the Sjögren’s FoundationBoard of Directors and a patient.4:50pmDay One Wrap-up
“Conquering Sjögren’s Together”Saturday, April 30, 2022 All times are Eastern Time1:00 pmOpening Remarks & AwardsJanet E. ChurchSjögren’s Foundation President & CEODonald E. Thomas, MD, FACP, FACRChair of the Board of Directors1:30pmOral Manifestations of Sjögren’sAva Wu, DDSApproximately 93% of Sjögren’s patientshave dry mouth and it’s importantto understand the daily care neededto minimize the impact to your oralhealth. Dr. Wu will share the range ofissues that can be caused by dry mouth,offer recommendations for successfulmanagement, and share tips on how to work with your dentistfor best long-term management. She will also share what’s newon the horizon for dry mouth and oral care.Dr. Ava Wu is an oral medicine specialist in San Francisco, CA. Shecares for patients experiencing the oral component of Sjögren’s,in which the body’s immune system mistakenly attacks its ownmoisture-producing glands, causing a dry mouth among otherpossible symptoms. In her research, Wu studies how Sjögren’sdevelops and ways to treat the complications of dry mouth. Sheis a current member of the Foundation’s Board of Directors and isauthor of a chapter in the fifth edition of The Sjögren’s Book.2:10pmExploring Sjögren’s Spotlight2:20pmThe Impact of Sjögren’s on Organs –Kidneys, Liver, PancreasChadwick Johr, MDWe all know that Sjögren’s is a serious andsystemic disease, but how involved are yourinternal organs? We will take a closer lookat how Sjögren’s can involve your kidneys,liver and pancreas. Dr. Johr will share whatwe need to know, tests we need to be awareof, and how we need to work with ourmedical team to ensure proper management and/or treatmentfor these organs.Dr. Chadwick Johr is an Associate Professor of Clinical Medicinein the Division of Rheumatology at the University of Pennsylvaniaand the Director of the Penn Sjögren’s Center. He is a currentmember of the Foundation’s Board of Directors and is author of achapter in the fifth edition of The Sjögren’s Book.3:00pmExploring Sjögren’s Spotlight3:10pmMusculoskeletal Pain and Sjögren’sSara McCoy, MDJoint and muscle pain are commonsymptoms of Sjögren’s patients. In fact,approximately 83% of patients suffer frommusculoskeletal pain. In this presentation,Dr. McCoy will share how Sjögren’s impactsthe musculoskeletal system, how doctorsdetermine the root of the pain, then she willoffer ideas on treatment and management.Dr. Sara McCoy is a rheumatologist and the Director of theUniversity of Wisconsin Health Sjögren’s Clinic. She is also afaculty member in the Division of Rheumatology within theDepartment of Medicine at the UW. Dr. McCoy is a currentrecipient of the Foundation’s High Impact Research Grant andwas also a 2021 recipient of the Foundation’s OutstandingAbstract Award. She publishes frequently on Sjögren’s-relatedtopics and has helped lead a team in the publication of the 2016Living with Sjögren’s survey data. Additionally, Dr. McCoy servedon the Consensus Expert Panel for the Foundation’s pulmonaryclinical guidelines for Sjögren’s.3:50pmExploring Sjögren’s Spotlight4:00pmResearch That Will Change Sjögren’sSteven Carsons, MDWe are at an exciting time in Sjögren’s research!There are new projects looking at Sjögren’s andautoimmune disease in new ways. Dr. Carsonswill share some of the most interesting researchhappening today, what we might learn, and howit could change the way Sjögren’s is diagnosedand treated in the future.Dr. Steven Carsons is a rheumatologist and Professor in the Dept.of Medicine and Senior Associate Dean- Research, at the NYU LongIsland School of Medicine. He is also the Chief of Rheumatology,Allergy and Immunology, NYU Langone Hospital-Long Island.He has been a long supporter and friend of the Foundation,previously serving on the Board of Directors and currentlyserves as Chair of the Foundation’s Clinical Practice GuidelinesCommittee. He is a highly sought-after clinician and leader inSjögren’s and is author of a chapter in the fifth edition of TheSjögren’s Book.continued next page
“Conquering Sjögren’s Together”Saturday, April 30, 2022 (continued)4:40pmClinical Trials: What EveryPatient Should Know5:20pmJanet E. ChurchSjögren’s Foundation President & CEOHerbert S. B. Baraf, MD, FACP, MACRThis session will give an overview ofclinical trials: how they are managed andanalyzed, the process and timing betweentrial phases, and why patient participationis critical to get new Sjögren’s therapies tomarket. Dr. Baraf will also highlight whatpatients need to know about participating inclinical trials and help you understand your patient rights.Dr. Baraf is a founding member and former managing partnerof Arthritis and Rheumatism Associates, one of the country’slargest private practice rheumatology groups. He founded anddirected his practice’s clinical research division, the Center forRheumatology and Bone Research, where he has served asprinciple investigator for over 400 clinical trials. He is a ClinicalProfessor of Medicine at The George Washington UniversitySchool of Medicine and a Clinical Associate Professor of Medicineat the University of Maryland School of Medicine. He is a Masterof the American College of Rheumatology and a recipient of theCollege’s Paulding Phelps Award. Dr. Baraf also previously servedon the Sjögren’s Foundation Board of Directors.Conference Recap and Closing RemarksDonald E. Thomas, MD, FACP, FACRChair of the Board of Directors5:30pmConference AdjournsQUESTIONS?Please visit our National PatientConference page atwww.sjogrens.org or call 301-530-4420Register online atwww.sjogrens.org
2022 Virtual National Patient ConferenceConqueringSjögrenʼs TogetherRegistration Form1RegistrantNameStreet AddressCity State ZipTelephone E-mail2FEES – please check appropriate feeMember 80.003Non-Member 100.00ooPAYMENT – Mail to Sjögren’s Foundation, 10701 Parkridge Blvd., Suite 170, Reston, VA 20191o Enclosed is a check or money order (in U.S. funds only, drawn on a U.S. bank, net of all bank charges)payable to Sjögren’s Foundation.o MasterCard o VISA o Discover o AmExCard Number Exp. Date CC Security CodeSignatureQUESTIONS? Call 301-530-4420 or visit www.sjogrens.orgPlease NoteRegistrants must have a device with internet access to join the conference. Recorded videosof each lecture will be available to registrants for 60 days a fter the conference.Register online at www.sjogrens.org
He is the Director of the Lupus Clinic at Cedars-Sinai. Dr. Wallace also serves as a professor of medicine at the David Geffen School of Medicine at UCLA and the Associate Director of the Rheumatology Fellowship Program at Cedars-Sinai Medical Center. He is an Associate Member of the Foundation's Medical & Scientific Advisory Board, Sjögren's
