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DIRECTORY OF MEDICAL INSTITUTIONSThe Institution Directory provides detailed information about each of the sites to help patients make moreinformed decisions about the care they receive. The Foundation does not endorse or recommend individualhealthcare providers. You are responsible for interviewing and selecting a practitioner. The institutions listed varygreatly in size, staff training, and services offered. We are happy to discuss options with you for your specificsituation, if needed. Healthcare provider information is supplied solely by the providers themselves. All informationis self-reported and unverified. Clicking on the hyperlinks below will open new documents.To view additional clinics that have not provided detailed information about their services and operations, clickhere.Hospitals listed here, including children’s hospitals, accept patients of all ages, unless otherwise noted.AlabamaUniversity of Alabama at BirminghamChildren’s of AlabamaUAB Marfan Syndrome and Related Disorders Clinic1700 6th Ave S., Suite 9100 (Women & Infants Center)Birmingham, AL 35233Referral necessaryContact:Ina Schaffer, Admin Office Specialist IIPhone: 205-996-2365Email: ischaffer@peds.uab.eduMedical Director:Walter H. Johnson, Jr., MDNathaniel Robin, MDArizonaMayo Clinic – ArizonaComprehensive Aortic Diseases Center5777 E. Mayo BlvdPhoenix, AZ 85054To register for a telemedicine visit, call 480-301-8484Clinic serves 16 years and olderContact:Ashlee Sanchez, RNPhone: 480-301-9586Allie Schling, SecretaryPhone: 480-301-8200Fax: 480-301-8018Medical Director:Jay Shah, MDCaliforniaHoag HospitalHoag Marfan Syndrome and Related Conditions Program(Located within the Elaine & Robert Matranga Aortic Center)One Hoag DrNewport Beach, CA 92663Contact:Meg Boeglin, BSN, RNPhone: 949-764-8468Email: megan.boeglin@hoag.orgMedical Director:David H. Liang, MD, PhD**Member, The Marfan Foundation Professional Advisory BoardUpdated June 2022

DIRECTORY OF MEDICAL INSTITUTIONS2California continuedUSC Keck Medical Center1520 San Pablo St, Suite 4300Los Angeles, CA 90033Medical Director:Robbin G. Cohen, MD, MMMUCLA Mattel Children’s HospitalUCLA Pediatric Marfan and Aortopathy Clinic200 Medical Plaza Driveway, Suite 330Los Angeles, CA 90095Clinic serves children to age 21; UCLA Adult CongenitalHeart Marfan Clinic serves 18 years and olderContact:Jennifer Rios, Genetic CounselorAppointments: 323-442-5849Email: jennifer.rios@med.usc.eduContact:Greg Perens, MDPhone: 310-267-7667Email: gperens@mednet.ucla.eduMedical Director:Greg Perens, MDRady Children’s Hospital of San Diego3020 Children’s WaySan Diego, CA 92123Clinic serves children to age 25Contact:Jan HedlunPhone: 858-966-5855jhedlun@rchsd.orgMedical Director:Paul Grossfeld, MDStanford Children’s HealthCardiovascular Connective Tissue Disorders Clinic1195 West Fremont AveSunnyvale, CA 94087Clinic serves children to age 22Referral necessaryContact:Samantha Mourrain, Nurse CoordinatorPhone: 650-924-5867Email: cctd@stanfordchildrens.orgMedical Director:Ronnie Thomas Collins, II, MDStanford University Medical CenterStanford Marfan Syndrome & Aortic Center300 Pasteur Dr, Room H2157Stanford, CA 94305Medical Director:David H. Liang, MD, PhD*Contact:Mitchel Pariani, MS, LCGC, Center CoordinatorPhone: 650-498-0675Email: mpariani@stanfordhealthcare.orgAppointments: 650-725-8246FloridaJoe DiMaggio Children’s HospitalMarfan Clinic1150 N. 35th Ave, Suite 490Hollywood, FL 33021Contact:Phone: 954-265-4637Medical Director:Roman Yusupov, MD*Member, The Marfan Foundation Professional Advisory BoardUpdated June 2022

DIRECTORY OF MEDICAL INSTITUTIONSFlorida continuedMount Sinai Medical CenterMarfan and Connective Tissues Disorder Clinic4300 Alton Rd, Suite 2110Miami Beach, FL 33140Contact:Luis Mourino, PA-C, MPASPhone: 305-674-2780Email: luis.mourino@msmc.comMedical Director:Steve Xydas, MDUniversity of Florida Health Heart and Vascular Center1505 SW Archer RdGainesville, FL 32608Medical Director:Tomas D. Martin, MDContact:Amy PendleyPhone: 352-273-8144Email: amy.pendley@surgery.ufl.eduGeorgiaChildren’s Healthcare of AtlantaEmory University School of MedicineSibley Heart Center Aorta and Vascular ProgramCHOA Center for Advanced Pediatrics (CAP Building)1400 Tullie Rd NEAtlanta, GA 30329Clinic serves children to age 21Contact:Leslie Bishop, CPNPPhone: 404-256-2593Email: bishopl@kidsheart.comMedical Director:Glen Iannucci, MDEmory HealthcareMarfan/Aortopathy Clinic within the Emory Aortic Center1365 Clifton Rd NEBuilding A, 2nd FloorAtlanta, GA 30322Clinic serves ages 21 and olderContact:Nikki Rose, SchedulerPhone: 404-778-3154Email: nakeitha.rose@emoryhealthcare.orgAlysa Zellner, NP, EUH CoordinatorMaria Traverso, NP, ESJH CoordinatorMedical Director:Bradley Leshnower, MDPiedmont Heart – Surgical Center OnlyPiedmont Aorta Center95 Collier Rd NW, Suite 5015Atlanta, GA 30309Clinic serves adults onlyContact:Scheduling Phone: 404-605-5151Backup Contact: Katherine LordPhone: 404-605-5438Email: katherine.lord@piedmont.orgMedical Directors:Vinod Thourani, MDW. Morris Brown, MDEyal Ben-Arie, MD*Member, The Marfan Foundation Professional Advisory BoardUpdated June 20223

DIRECTORY OF MEDICAL INSTITUTIONSIllinoisAnn & Robert H. Lurie Children’s Hospital of ChicagoConnective Tissue Disorder Program225 E. Chicago Ave, Box 21Chicago, IL 60611Clinic serves children to age 18Contact:Diane Martin312-227-1551Medical Directors:Joseph Camarda, MDNorthwestern Memorial HospitalBluhm Cardiovascular InstituteMarfan Syndrome and Related Disorders Clinic675 N. St. Clair St., 19-100Chicago, IL 60611Clinic serves adults only; children seen at Lurie Children’sContact:Janice KnuckeyPhone: 312-695-0105Email: jknuckey@nm.orgMedical Directors:Marla Mendelson, MDChris Malaisrie, MD*Lisa Wilsbacher, MDIndianaIU Health (Indiana University Health)Multidisciplinary Aortopathy Clinic (MAC)Riley Outreach Center at IU HealthPediatric Cardiology Clinic575 Riley Hospital Dr, Suite MSA 2Indianapolis, IN 46201An echocardiogram and an ophthalmology evaluation priorto appointments are helpful; serves adults and childrenContact:Stephanie Caine, SchedulerPhone: 317-944-9337Medical Director:Ben Landis, MDKentuckyUniversity of Louisville / Norton Children’s Medical GroupMarfan Syndrome and Connective Tissue ClinicNovak Center for Children’s Health411 East Chestnut StLouisville, KY 40202Clinic serves children to age 18, transitions adultsto adult practiceContact:Nicole Jarrett, Clinic ManagerPhone: 502-588-7450Email: nicole.jarrett@nortonhealthcare.orgMedical Director:Lucinda Thurman Wright, MD*Member, The Marfan Foundation Professional Advisory BoardUpdated June 20224

DIRECTORY OF MEDICAL INSTITUTIONS5MarylandJohns Hopkins UniversityCardiovascular Connective Tissue ClinicThe Charlotte R. Bloomberg Children’s Center1800 Orleans St, Rm 2201Baltimore, MD 21287Contact:Gretchen MacCarrick, MS, CGC*Phone: 410-955-3071, Ext 1Email: goswald1@jhmi.eduMedical Director:Hal C. Dietz, MD*MassachusettsBoston Children’s HospitalMarfan Syndrome, Connective Tissue, andRelated Disorders ProgramDepartment of Cardiology300 Longwood AveBoston, MA 02115Contact:Ciara McManus, NPEmail: ciara.mcmanus@cardio.chboston.orgPhone: 617-355-8794Medical Directors:Ronald V. Lacro, MD*Michael N. Singh, MDMassachusetts General HospitalMarfan Syndrome and Related Conditions ClinicCorrigan Minehan Heart Center55 Fruit StBoston, MA 02114Contact:Phone: 617-726-5700Email: mghheartcenter@partners.orgMedical Directors:Duke Cameron, MD*Amy Spooner, MDMichiganMichigan Medicine Frankel Cardiovascular CenterMI-AORTA at the Michigan Frankel Cardiovascular Center1500 E. Medical Center Dr, 3rd Floor, Reception CAnn Arbor, MI 48109Contact:Phone: 888-287-1082Medical Directors:Marion Hofmann-Bowman, MDClinic serves adults onlyMinnesotaMayo ClinicMarfan and Thoracic Aorta Clinic200 First St SWRochester, MN 55905Medical Directors:Juan Bowen, MD*Joseph Dearani, MD*Member, The Marfan Foundation Professional Advisory BoardContact:Caroline ArpinPhone: 507-284-3758Email: arpin.caroline@mayo.eduAppointments: 507-538-8124Updated June 2022

DIRECTORY OF MEDICAL INSTITUTIONS6MissouriChildren’s Mercy Kansas CityCardiovascular Genetics Clinic2401 Gillham RdKansas City, MO 64108Clinic serves children to age 21Contact:Janda Jenkins, MS, CGC, Genetic CounselorPhone: 816-302-3290Email: jljenkins@cmh.eduMedical Directors:Luisa F. Waitman, MDCardinal Glennon Children’s HospitalMarfan Clinic1465 S. Grand BlvdSt. Louis, MO 63104Clinic serves children to age 18Medical Director:Chetana Reddy, MDBarnes-Jewish Hospital / Washington UniversitySchool of MedicineMarfan Syndrome and Aortopathy Center4921 Parkview Place, Suite 8ASt. Louis, MO 63110Clinic serves adults onlyContact:Pediatric Cardiology Schedulers:Cheryl Doeschot or Angela BattlesPhone: 314-577-5674Genetic Counselor (for Marfan screening):Katherine ChristensenPhone: 314-268-2700, Ext 3282Contact:Dana Gima, RNBarb Stehman, RNCheryl Marshall, Administrative AssistantPhone: 314-362-1291Medical Director:Alan C. Braverman, MD, FACC*New JerseyRutgers Robert Wood Johnson Medical SchoolRutgers Robert Wood Johnson Aortic Clinic125 Paterson StreetClinical Academic Building, Suite 4100New Brunswick, NJ 08901Contact:Meghan SmithPhone: 732-235-7810Email: ms3008@rwjms.rutgers.eduMedical Director:Leonard Lee, MDMorristown Medical CenterAtlantic Aortic Center at Morristown Medical Center100 Madison AveMorristown, NJ 07960Clinic serves adults onlyContact:Phone: 973-971-7300Medical Director:Benjamin van Boxtel, MD*Member, The Marfan Foundation Professional Advisory BoardUpdated June 2022

DIRECTORY OF MEDICAL INSTITUTIONS7New YorkNorthwell HealthCenter for Marfan Syndrome and Connective Tissue Disorders300 Community DrManhasset, NY 11030Clinic serves adults onlyContact:Melissa Chau / Joan O’ConnellPhone: ell.eduMedical Director:Derek Brinster, MDIcahn School of Medicine at Mount SinaiCardiovascular Genetics ProgramMount Sinai Medical CenterChildren’s Heart Center1468 Madison Ave (at 100th St)Annenberg Building, 3rd FloorNew York, NY 10029Contact:Veronica Fettig, CGCPhone: 212-241-3783Email: veronica.fettig@mssm.eduAppointments: 844-733-7692Email: childrensheartscheduling@mssm.eduMedical Directors:Bruce D. Gelb, MDLakshmi Mehta, MDNew York Presbyterian HospitalMorgan Stanley Children’s HospitalColumbia University Irving Medical CenterPediatric Marfan ClinicDivision of Pediatric Cardiology3959 Broadway, CHN-2New York, NY 10032Clinic serves children through age 18Contact:Phone: 844-HRT-DOCSMedical Directors:Emile Bacha, MDMichael DiLorenzo, MDAlexandra Channing, MDWeill Cornell MedicineMarfan Syndrome and Related Conditions Clinic525 East 68th StNew York, NY 10065Medical Directors:Mary J. Roman, MD*Richard B. Devereux, MD*Division of Human Genetics505 East 70th St, Helmsley Tower, 3rd FloorNew York, NY 10021Contact:Wanda Brown (cardiology)Phone: 646-962-4733Email: wobrown@med.cornell.eduKarmen Baez (cardiothoracic surgery)Phone: 212-746-5194Email: kab2026@med.cornell.eduContact:Phone: 646-962-2205Medical Director:Christopher Cunniff, MD*Member, The Marfan Foundation Professional Advisory BoardUpdated June 2022