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Pediatric Quality of Life Inventory (PedsQL )SCALING AND SCORING OF THEPediatric Quality of Life Inventory TMPedsQLMapi Research Trust27 rue de la Villette69003 LyonFrancePhone: 33 (0) 4 72 13 66 66Submit your request directly on our platform:https://eprovide.mapi-trust.org/Version 17: May 2017James W. Varni, Ph.D.Professor EmeritusDepartment of Pediatrics, College of MedicineDepartment of Landscape Architecture andUrban PlanningCollege of Architecture3137 TAMUCollege Station, Texas 77843-3137USAEmail: jvarni@tamu.eduPage 1 of 146
Pediatric Quality of Life Inventory (PedsQL )PedsQL TM 4.0 Generic Core Scales . 5PARENT Report for Toddlers (ages 2-4) . 5CHILD and PARENT Reports for Young Children (ages 5-7), Children (ages 8-12), Teens (ages13-18) . 7YOUNG ADULT and PARENT Report for Young Adult (ages 18-25), ADULT and PARENTReport for Adult (ages over 26) . 9PedsQL TM 4.0 SF15 Generic Core Scales . 11PARENT Report for Toddlers (ages 2-4), CHILD and PARENT Reports for Young Children(ages 5-7), Children (ages 8-12), Teens (ages 13-18), Young Adults (ages 18-25) and Adults(ages over 26) . 11PedsQL TM 3.0 Arthritis Module . 14PARENT Report for Toddlers (ages 2-4) . 14CHILD and PARENT Reports for Young Children (ages 5-7) . 16CHILD and PARENT Reports for Children (ages 8-12), Teens (ages 13-18) . 18PedsQL TM 3.0 Asthma Module . 20PARENT Report for Toddlers (ages 2-4) . 20CHILD and PARENT Reports for Young Children (ages 5-7), Children (ages 8-12), Teens (ages13-18) . 22PedsQL TM 3.0 SF22 Asthma Module . 24PARENT Report for Toddlers (ages 2-4) . 24CHILD and PARENT Reports for Young Children (ages 5-7), Children (ages 8-12), Teens (ages13-18) . 26PedsQL TM Brain Tumor Module . 28PARENT Report for Toddlers (ages 2-4) . 28CHILD and PARENT Reports for Young Children (ages 5-7) . 30CHILD and PARENT Reports for Children (ages 8-12), Teens (ages 13-18) . 32PedsQL TM 3.0 Cancer Module . 34PARENT Report for Toddlers (ages 2-4) . 34CHILD and PARENT Reports for Young Children (ages 5-7) . 36CHILD and PARENT Reports for Children (ages 8-12), Teens (ages 13-18), Young Adults (ages18-25), and ADULT Report (ages over 26) . 38PedsQL TM 3.0 Cardiac Module . 40PARENT Report for Toddlers (ages 2-4) . 40CHILD and PARENT Reports for Young Children (ages 5-7) . 42CHILD and PARENT Reports for Children (ages 8-12), Teens (ages 13-18), Young Adults (ages18-25), and Adults (ages over 26) . 44PedsQL TM 3.0 Cerebral Palsy Module . 46PARENT Report for Toddlers (ages 2-4) . 46CHILD and PARENT Reports for Young Children (ages 5-7), Children (ages 8-12), Teens (ages13-18) . 48PedsQL TM Cognitive Functioning Scale. 50PedsQL TM 3.0 Diabetes Module . 52PedsQL TM 3.2 Diabetes Module . 54PedsQL TM 3.0 Duchenne Muscular Dystrophy Module . 56PARENT Report for Young Children (ages 5-7). 56CHILD and PARENT Reports for Children (ages 8-12) and Teens (ages 13-18) . 58PedsQL TM 3.0 End Stage Renal Disease Module . 60PARENT Report for Toddlers (ages 2-4) . 60Version 17: May 2017Page 2 of 146
Pediatric Quality of Life Inventory (PedsQL )CHILD and PARENT Reports for Young Children (ages 5-7), Children (ages 8-12), Teens (ages13-18), and Young Adults (ages 18-25). 62PedsQL TM 3.0 Eosinophilic Esophagitis Module. 64PARENT Report for Toddlers (ages 2-4) . 64CHILD and PARENT Reports for Young Children (ages 5-7) . 66CHILD and PARENT Reports for Children (ages 8-12) and Teens (ages 13-18) . 69PedsQL TM Eosinophilic Esophagitis Symptoms Scales . 71PARENT Report for Toddlers (ages 2-4) . 71PARENT Reports for Young Children (ages 5-7) . 73CHILD and PARENT Reports for Children (ages 8-12) and Teens (ages 13-18) . 75PedsQL TM 3.0 Epilepsy Module . 77PARENT Report for Toddlers (ages 2-4) . 77CHILD Reports for Young Children (ages 5-7) . 79CHILD and PARENT Reports for Children (ages 5-7), Children (ages 8-12), Teens (ages 13-18),Young Adults (ages 18-25) . 81PedsQL TM 2.0 Family Impact Module . 83PARENT Report . 83PedsQL TM 3.0 Gastrointestinal Symptoms Module . 86PARENT Report for Toddlers (ages 2-4) . 86CHILD and PARENT Report for Young Children (ages 5-7). 89CHILD and PARENT Reports for Children (ages 8-12), Teens (ages 13-18) and Young Adults(18-25) . 92PedsQL TM 3.0 Gastrointestinal Symptoms Scales . 95PARENT Report for Toddlers (ages 2-4) . 95CHILD and PARENT Reports for Young Children (ages 5-7) . 97CHILD and PARENT Reports for Children (ages 8-12), Teens (ages 13-18) and Young Adults(ages 18-25). 99PedsQL TM General Well-Being Scale . 101CHILD, ADOLESCENT and YOUNG ADULT Report (ages 8-25 years of age) . 101PedsQLTM Healthcare Satisfaction Generic Module . 103PedsQLTM Healthcare Satisfaction Hematology / Oncology Module. 105PedsQL TM Infant Scales . 107PARENT Report for Infants (ages 1-24 months). 107PedsQL TM Multidimensional Fatigue Scale. 110PedsQL TM 3.0 Neurofibromatosis Module . 112CHILD and PARENT Reports for Young Children (ages 5-7), Children (ages 8-12), Teens (ages13-18), Young Adults (ages 18-25), and Adults (ages over 26) . 112PedsQL TM 3.0 Neuromuscular Module . 115PedsQL TM Oral Health Scale . 117PedsQL TM Pediatric Pain Coping InventoryTM (PPCI) . 119PARENT Report for Children and Teens (ages 5-18), CHILD Report for Children (ages 5-12),Teens (ages 13-18) . 119PedsQL TM Pediatric Pain Questionnaire TM (PPQ) . 121PedsQL TM Present Functioning Visual Analogue Scale (PedsQL TM VAS) . 123CHILD and PARENT reports for CHILD (ages 5-18) . 123PedsQL TM 3.0 Rheumatology Module. 125PARENT Report for Toddlers (ages 2-4) . 125CHILD and PARENT reports for Young Children (ages 5-7) . 127CHILD and PARENT reports for Children (ages 8-12) and Teens (ages 13-18) . 129Version 17: May 2017Page 3 of 146
Pediatric Quality of Life Inventory (PedsQL )PedsQL TM 3.0 Sickle Cell Disease Module . 131PARENT Report for Toddlers (ages 2-4) . 131CHILD and PARENT Reports for Young Children (ages 5-7) . 133CHILD and PARENT Reports for Children (ages 8-12),Teens (ages 13-18), Young Adults (ages18-25), and Adults (ages over 26) . 135PedsQL TM 1.0 Stem Cell Transplant Module . 137PARENT Report for Toddlers (ages 2-4) . 137PARENT Report for Young Children (ages 5-7). 139CHILD and PARENT Reports for Children (ages 8-12) . 141TEEN and PARENT Reports for Teens (ages 13-18) . 143PedsQL TM 3.0 Transplant Module . 145Version 17: May 2017Page 4 of 146
PedsQL TM 4.0 Generic Core ScalesPedsQL TM 4.0 Generic Core ScalesPARENT Report for Toddlers (ages 2-4)Version 17: May 2017Page 5 of 146
PedsQL TM 4.0 Generic Core ScalesThe Parent Report for Toddlers (ages 2-4) of the PedsQLTM 4.0 Generic Core Scales iscomposed of 21 items comprising 4 dimensions.DESCRIPTION OF THE QUESTIONNAIRE:DimensionsPhysicalFunc
Scores are transformed on a scale from 0 to 100. Scoring Procedure Step 1: Transform Score Items are reversed scored and linearly transformed to a 0-100 scale as follows: 0 100, 1 75, 2 50, 3 25, 4 0. Step 2: Calculate Scores Score by Dimensions: If more than 50% of the items in the scale are missing, the scale scores should not be computed.
