Transcription
A reference guide to your care at the Duke Cancer Center
Cancer survivor John Sanders, age 61, from North Augusta, SouthCarolina poses with Radiation Oncologist Manisha Palta, MD, andSurgical Oncologist Kevin Shah, MD. Sanders was diagnosed withpancreatic cancer in 2018 and is now cancer free. When Sanders wasasked why he chose Duke, he shared that his decision was not onlybased on the expertise and cutting-edge research, but also for thesupport services available to him and his family. He closed with saying,“If you want life, GO to Duke.”2A reference guide to your care at Duke
Welcome to the Duke Cancer InstituteIntegrating innovative research with compassionate careThank you for choosing the Duke Cancer Institute (DCI) for your healthcareneeds. The DCI is a single entity that effectively integrates and alignsinnovative research and exceptional education with compassionateclinical care. This means your physicians, some of the most renownedmedical specialists in the world, have virtually instant access to innovativescientists who continue the quest to find better treatments and a cure forthe challenging set of diseases we call cancer. At Duke, we continueto blaze new trails in cancer care and prevention.The DCI is a National Cancer Institute-designated Comprehensive CancerCenter, one of only 51 in the nation. The Duke Cancer Center is a state-of-the-art patient carefacility consolidating in one convenient location almost all outpatient clinical care services. Thefacility offers helpful programs and services, including a patient resource center, retail pharmacy,self-image boutique, quiet room, café and outdoor garden. Top quality Duke cancer care is nowcloser to home than ever before. For added convenience, depending on the type of cancer andtreatment needed, patients can elect to seek care at one of our four cancer centers located inWake County. Locations include Duke Cancer Center Raleigh, Duke Women’s Cancer Care Raleigh,Duke Cancer Center Cary; and Duke Cancer Center Cary Radiation Oncology. Expanded servicesin Durham include Duke Cancer Center North Durham and Duke Surgical Oncology at NorthDuke Street.The recipient of more than 250 million annually in research funding, the DCI focuses onbasic, translational, clinical and population research. The DCI offers advanced technologiesand techniques long before most clinical trials become routinely available at other healthcareinstitutions. This pioneering approach to healthcare helps to ensure our patients receiveindividually tailored cancer treatment options.Through the decades and across the globe, patients and their families have benefited fromDuke’s unwavering commitment to excellence in cancer care, education and research. Thank youfor choosing the DCI for your care. It is our privilege to provide to you and your family cancer careas it should be.Sincerely,Michael B. Kastan, MD, PhDExecutive Director, Duke Cancer InstituteDuke University Health Systemis very proud to have achievedMagnet recognition.DukeCancerInstitute.org3
A state-of-the-art facility, innovative researchand compassionate care — all for youImproving your experienceEstablished in 2012, the Duke Cancer Center was designed with input from patients, familiesand caregivers to ensure you and your loved ones experience a welcoming, supportive andhealing environment.Team-based, disease-specific careThe Duke Cancer Institute brings together the many aspects of your care into one convenientlocation. A team of physicians, nurses, pharmacists, medical family therapists, social workers,dietitians and others will work together within a multidisciplinary disease-based program toprovide you with your care needs.RegistrationRegistration is designed to improve flow and effortless navigation of the facility. You will checkin with our patient service associates, and will receive a pager, which provides additional privacyand allows for visiting other areas of the building until notified to come to your appointment.Spaces for you and your familyThe Duke Cancer Center is open Monday through Friday, from 6 a.m. to 11 p.m. A videointroduction to the Duke Cancer Center and video tours of the facility are available atDukeHealth.org/CancerTour. To reach the Front Desk, please call 919-613-1908.Duke Cancer CenterFront Desk919-613-1908Manisha Palta, MD, greets cancer survivor John Sanders and his granddaughter Akhayla.Palta successfully treated Sanders for pancreatic cancer.4A reference guide to your care at Duke
Spaces for you and your familyTropical Smoothie Café – Level 0Tropical Smoothie Café offers ahealthy menu featuring real-fruitsmoothies, bowls, flatbreads, wrapsand sandwiches. The café featuresindoor and outdoor seating.Resource Center – Level 0The Resource Center works with yourhealthcare team to provide writtenand online information on specifictypes of cancer treatments, sideeffects, coping strategies, familyissues, nutrition and more. Thecenter offers educational materials,computer kiosks and a skills lab forpatients and their families. PatientNavigators are available to assist inaccessing cancer care services andresources. The Resource Center isopen Monday through Friday, from8 a.m. to 4 p.m. For more information,call 919-684-6955.Retail Pharmacy – Level 0The Duke Cancer Center SpecialtyPharmacy provides a convenientlocation for filling prescriptions aswell as purchasing over-the-countermedications. Our pharmacy is openMonday through Friday, from 8:30a.m. to 6 p.m. For more information,call 919-613-2000.Quiet Room – Level 0The Quiet Room provides a tranquilspace where patients and theirfamilies can take time to reflect, relax,meditate or pray. The Quiet Roominspires peace, quiet and spiritualmeditation for individuals ofall faiths.Belk Boutique – Level 0The 1,000-square-foot Belk Boutiqueoffers the latest trends in wigs,hats, caps, scarves, self-imageproducts, post-surgical garmentsand prosthetics. Private consultationrooms are available. Products andservices are available to men andwomen. The boutiqueis open Monday through Friday, from9 a.m. to 4 p.m. For more information,call 919-613-1906.GardensThe Duke Cancer Center offerstwo outdoor spaces for meditativethought and reflection. The SeeseThornton Garden of Tranquility isconveniently located in front of theDuke Cancer Center. The BernsteinFamily Gardenis located off the Oncology TreatmentCenter Waiting Room on Level 4. Makethe most of your time by visiting theserestorative locations.Common AreasBeginning in the soaring centralatrium, the Duke Cancer Center’scommon spaces foster a feeling ofcomfort and relaxation. Clinics offerspacious, comfortable waiting areasfeaturing large windows and naturallight. Host stationscan be found inwaiting areasChargingstations availableon every floor as wellas complimentaryWiFi ute.org55
Resources and supportWe are committed to treating you as a wholeperson, mind and body, not just your cancer.We believe quality comprehensive cancer careinvolves attending to issues beyond the scope oftraditional models of medicine. We understandcancer not only affects you; it also touches thelives of those surrounding you. The care weprovide extends to your family and your supportnetwork. In fact, most of our cancer supportservices are provided at no additional charge toyou and your loved ones.their specific needs. Social workers establishinterventions to help our patients alleviatestressors and the financial burden associatedwith a cancer diagnosis, as well as connectpatients and families to resources such asdisability, home health/hospice, advancedirectives and end of life care. For assistancein finding the most appropriate social worker,please contact the Patient Resource Center at919-684-6955.Cancer patient support servicesDuke chaplains are on-site seven days a week,24 hours a day to offer spiritual support topatients and their families. When requested,they connect patients and their familieswith faith-specific representatives from thecommunity. To learn more, call 919-684-8111and ask for the on-call chaplain to be paged.The Duke Cancer Patient Support Program offersservices for patients and their loved ones. Wehelp patients understand their options, makedecisions and manage the effects of cancerand its treatment. Services include: individual,couple, and family therapy; support groups;self-image resources; pet therapy; child-lifeservices; recreation therapy; and more. Thereis no charge to patients and their families. Formore information call 919-684-4497 or visitDukeHealth.org/CancerSupport.Patient navigationPatient navigators help identify and evaluatebarriers to timely diagnosis and treatmentof cancer. Duke Cancer Institute’s patientnavigation is a part of the Supportive Care andSurvivorship Center and focuses on patientswho are faced with multiple barriers such astransportation, housing and financial concerns.For more information or to speak with a patientnavigator, call 919-668-3882.Chaplain servicesChild-life servicesThe diagnosis of cancer impacts every memberof the family, including children and teens.Our certified child life specialist strives to helpchildren and teens better understand and copewith serious illness in the family. Education andsupportive activities can reduce thestress experienced by children and teens andmake it easier for families to talk about theillness experience. To schedule an appointmentwith our child life specialist, call 919-684-2913.Clinical social workOncology and palliative care social workershelp patients and their loved ones cope withthe emotional and practical concerns thataccompany the diagnosis and treatment ofcancer. Our social workers assess individualsand family members to identify and address6A reference guide to your care at DukeJohn Sanders and his partner, Beverly Gurley, enjoyspending time time in the Quiet Room.
Therapy and counselingOur medical family therapists provide individual,couple and family therapy. They help patients andtheir loved ones cope with the impact that cancerhas on their lives. Psychiatry and psychologyservices are also offered as part of our treatmentfor emotional, psychological and relational issuesassociated with a cancer diagnosis. For additionalinformation, call 919-684-4497.Cancer nutritionOur registered dietitian/nutritionists specializein oncology, working collaboratively with youto make sure you’re well-nourished throughoutyour cancer treatment. Dietitians help to preventand treat malnutrition, restore digestive health,minimize the side effects of your cancertreatment and work with you in survivorship.For more information, call 919-613-6379 to bedirected to the dietitian who specializes in yourcancer diagnosis.Duke Cancer Institute provides a variety of supportservices and resources for the entire family.Speech pathology and audiologyMedical interpreters are available and can berequested when scheduling your appointment.We provide diagnostic and rehabilitation servicesto include a wide range of hearing, cognitivecommunicative, and swallowing issues related tocancer and/or the effects of treatments. A teamof skilled clinicians will work with you to identifyand improve difficulties with hearing, speaking,memory, attention, problem solving, language andswallowing. Our clinicians focus on functional andpractical therapy plans with a goal of achievingthe best quality of life possible. To schedule anappointment or to seek further informationregarding available programs, call 919-684-3859.Physical and occupational therapy servicesPersonalized exercise consultationsInterpretersDuke Health provides a variety of outpatientphysical and occupational therapy services.Services include assessments and treatments forthe following conditions: general weakness anddeconditioning, chronic pain, changes in cognition,impairment with fine motor dexterity, alterationsin vision, incontinence and sexual health issues.Specialized programs are also offered, includinglymphedema management, falls risk assessments,functional capacity evaluations, drivingevaluations, wheelchair seating evaluations,facial paralysis and pelvic floor rehabilitation.To schedule an appointment or to seek furtherinformation regarding our programs, please call919-684-2445.The Supportive Care and Survivorship Centeroffers personalized exercise consultations byexercise physiologists and certified trainers. Formore information or to schedule an appointment,call 919-684-6955.Sexual health servicesSexual health services are available through theDuke Cancer Patient Support Program. Theseservices include patient education on theimpact of cancer treatments on sexual healthand intimacyand therapy services that addressconcerns surrounding sexual function, sexualfeelings, intimacy and changes in sexualhealth. For more information or to schedule anappointment, call 919-684-4497.DukeCancerInstitute.org7
doctors to help you understand your treatmentoptions and make decisions about your care.We’re here to help you gain emotional andpsychological strength, and to ensure you andyour loved ones experience the best possiblequality of life. Although palliative care providerssometimes see people at the end of life, and wemay talk with you about what hospice offers,we are not hospice care. We can help withpain control, symptom management, complexmedical decisions, navigation of complexhealth care issues, and advance care planning,including a living will or health care power ofattorney. Palliative Care is available to you inour outpatient clinic and in the hospital. Toschedule an appointment, call 919-668-6688,option #7. Please visit DukePalliativeCare.orgfor more information.Clinical trialsQuit at DukeQuit at Duke is a program designed to helppeople quit using tobacco products. Servicesare provided by tobacco treatment specialistsand behavioral medicine clinicians. For moreinformation or to schedule an appointment,please call 919-613-QUIT (7848).Genetics counselingThe Hereditary Cancer Clinic offers cancer riskassessment and education to patients withcancer and people with a family history of canceror other cancer risk factors. For more informationor to make an appointment, call 919-684-3181.Palliative careDuke’s palliative care experts help you find relieffrom the pain, symptoms and stress of seriousillness. No matter your age or the stage ofyour illness, we work closely with you and your8A reference guide to your care at DukeClinical trials offer hope for many people.These studies allow our researchers todiscover, develop and deliver the mostadvanced treatment options available,including the latest cancer drugs, surgicaltechnologies and radiation therapies. DukeCancer Institute patients have access to abroad selection of Duke-initiated and nationalclinical trials across all types of cancer. For moreinformation and questions about clinical trialsfor your cancer type, consult your doctor, or visitDukeCancerInstitute.org/Clinical-Trials. Youmay also contact the Duke RecruitmentInnovation Center at 919-681-5698.Teen and young adult oncology programDuke Cancer Institute’s Teen and YoungAdult Oncology Program provides teen andyoung adult patients (ages 15 to 29) and theirfamilies with support and community duringa cancer diagnosis, treatment and survivorship.The program offers specialized medical care;individual, couple and family therapy; peer
connection; and activity-based groups, bothin the medical center and in the community.To learn more call 919-684-4497 or visitDukeCancerInstitute.org/TYAO.Survivorship servicesOur cancer survivorship initiative focuses on thedesign and delivery of high-quality survivorshipcare. We partner with patients and their familiesto help them achieve healthy, fulfilling livesbeyond cancer. Areas of care that are addressedinclude assessment and management of bothphysical and emotional needs that may resultfrom the cancer experience; cancer screeningsand monitoring; and counseling related toprevention and health promotion. We offer anumber of clinical and supportive services. Formore information, call 919-668-2122.Oncology recreation therapyThis program assists hospitalized adults withcancer and their family members in adjustingto illness, treatment and hospitalization.Recreational therapy treatment interventionsand general recreational activities andresources are offered. For more information,call 919-681-2928.Volunteer servicesThe Duke Cancer Patient Support Programoffers volunteers trained to work with you andyour family members. They provide conversationand companionship. Our volunteers guidepatients to locations and resources within theclinics and hospital and play a vital role in theday-to-day activities at the Duke Cancer Center.To learn more about volunteer opportunities,call 919-684-3651.Pet therapyPets at Duke, a service offered through theDuke Cancer Patient Support Program, offersmany benefits to our patients. Researchshows that animal-assisted therapy, or pettherapy, is an effectiveform of psychotherapyintervention thatreduces stress, anxietyDuke Cancerand fear. It alsoCenter Front Deskprovides a sense of919-613-1908companionship thatcan combat feelings ofisolation. Pets at Dukeoffers individual inpatientvisits and visits in designated areas of theCancer Center. For more information, speak withyou Duke Health provider, visit DukeHealth.org/PetsAtDuke or call 919-684-4497.Free legal servicesDuke Law School’s Health Justice Clinic offersfree legal assistance to help you deal withlegal issues that may accompany your medicaldiagnosis and treatment. Volunteer lawstudents from the Cancer Pro Bono Projectare also available to help prepare importantlegal documents, such as healthcare powerof attorney, living will and general power ofattorney. Free legal services through the Officeof Public Interest and Pro Bono are available toDuke Cancer Center patients on the first andthird Fridays of the month, from 10 a.m. tonoon and from 1 p.m. to 3 p.m. To schedulean appointment, call 919-613-7169.Patient advocatesThe Department of Patient and Visitor Relationsassists patients and their families. As advocatesfor you and your family, patient representativescan listen to and follow up on your concerns,answer questions or direct your request to theappropriate hospital department and arrange forspecial services or direct you to resources in thecommunity. For more information, call919-681-2020.DukeCancerInstitute.org9
Additional resourcesDuke Cancer Center telephone triageserviceThe Duke Cancer Center telephone triage serviceis available Monday through Friday, from 8 a.m.to 5 p.m. by calling 919-668-6608. Patients canselect from six options, including: scheduling anappointment, billing inquiry, prior authorizationsand other paperwork needs, prescription refills,test results and nurse advice.Cancer care calendarCancer care calendars contain dates andtimes for support groups, salon & makeupservices, boutique resources, exerciseconsultations, educational sessions, upcomingspecial events and much more. Printed copiesare available at our cancer care locations inWake and Durham counties. The calendarcan be viewed online by schedule an appointmentIf you need to reschedule an appointment, callthe number listed on your appointment letteror email reminder. If this number is not readilyavailable, please call 919-668-6688, Mondaythrough Friday, 8 a.m. to 5 p.m.Duke Consultation and Referral CenterFor more information on services offeredat the Duke Cancer Institute, contact theDuke Consultation and Referral Center at888-275-DUKE (888-275-3853). The referralcenter is open Monday through Friday, from8 a.m. to 5 p.m.Duke Cancer Institute Office ofDevelopmentMany of our patients and their families want toknow what they can do to help make a differencein the lives of others battling cancer. The DCIDevelopment Office helps to foster workingpartnerships between our patients and our10A reference guide to your care at Dukescientists, who are on the frontlines of cancerresearch. Philanthropic support from patientsand their loved ones enables us to advance newmodels of patient-centered care; to prepare thenext generation of compassionate and innovativecancer doctors and researchers; and to continueto bring novel, improved treatments to patientsat Duke and beyond. Ultimately, patient supportaccelerates our quest to cure cancer. There aremany ways to support the Duke CancerInstitute and its efforts. To learn more or tomake a donation, contact the DCI Officeof Development at 919-385-0039 or visitDukeCancerInstitute.org/Donors.American Cancer Society Road toRecovery programThe Road to Recovery program is a serviceoffered at no charge that matches DurhamCounty and Wake County patients who needtransportation assistance with local volunteerswilling to drive them to oncology appointmentsat the Duke Cancer Center or Duke CancerCenter North Durham. Cancer patients needingtransportation to their appointment or whowould like more information about the programcan call 800-ACS-2345.
DukeMyChart asked questionsFrequentlyDuke MyChart is a free service that offers you personalized and secure online access to portionsof your medical record. It is an online tool that allows you to manage and receive informationabout your health. With Duke MyChart, you can: Schedule and cancel medical appointments Communicate electronically and securely with your medical care team View your health summary View test results Complete clinical questionnaires Read your providers’ notes from your office visits Request prescription refillsTo start using Duke MyChart, visit DukeMyChart.org and follow the instructions to sign up.You can also add a loved one or caregiver to your account so he or she is able to view your labreports, request appointments and use other MyChart features. If you have questions aboutDuke MyChart or need assistance setting up an account, contact the Duke Health CustomerService Center at 800-782-6945.Frequently asked questionsWhat should I bring to my appointment?We suggest you bring this reference guide with you. You may wish to highlightsections and perhaps even jot down some notes. The handy pockets are reserved forthe safekeeping of information you may receive from your providers. If you receiveda digital copy of this reference guide before your first visit, please be sure to ask for aprinted version at your first visit. Completed new patient packet if one was provided All medicines, vitamins, and supplements (in original containers or take picturesof the medicine labels) Any medical records, not obtained during the scheduling process, that mayneed that may need to be reviewed (such as x-rays, scans and lab resultsrelated to the reason for your visit) Photo ID Insurance cardsPWhere should I park?See the “Directions, Parking & Maps” information provided in this packet on pages16-17. Additional resources are available at DukeHealth.org.DukeCancerInstitute.org11
Frequently asked questionsWhat can I expect when I visit?The Duke Cancer Center offers disease-sitenursing, which means you have nurses whoare focused on your particular cancer. Ateach appointment, you will see the samenursing team.At the Duke Cancer Canter, we are dedicatedto a multidisciplinary approach to cancer care.Our goal is to streamline your care. In a singlevisit, depending on your diagnosis, you may seea variety of specialists, including your medicaloncologist, surgeon, radiation oncologistand geneticist. In many instances, you willalso meet with a nurse, a pharmacist and asocial worker.Your new patient appointment may beginwith a nurse, nurse practitioner or physicianassistant. At that time, your healthcare providerwill review and discuss your health historywith you. He or she may ask additionalquestions to establish a complete overviewof your diagnosis and treatment history.Required lab tests or imaging studies mayincrease the length of your visit, so weencourage you to make any necessary childcareor pet care arrangements. You are encouragedto bring a sweater or light jacket, readingmaterial, a laptop, or mobile device and powercords. Free wireless internet service is providedthroughout the Cancer Center.?What do I need to know about clinicaltrials offered at Duke?After meeting with your health care team, youwill be seen by a cancer specialist who willdiscuss with you in detail treatment optionsand next steps.Clinical trials offer hope for many people.These studies allow our researchers to discover,develop and deliver the most advancedtreatment options available, including thelatest cancer drugs, surgical technologies andradiation therapies. Duke Cancer Institutepatients have access to a broad selection ofPhase 1, Phase 2 and Phase 3 Duke-initiated andnational clinical trials across all types of cancer.People choose to participate in clinicaltrials because they want to take part in theadvancement of new discoveries. They feelempowered when they take a more active rolein their health. They can gain access to newtreatments before they are widely available.On subsequent visits, your medicines andsymptoms will be reviewed by a nurse. Youwill then see either your cancer specialist orthe nurse practitioner or physician assistantwho works with your cancer specialist. Ourphysician assistants and nurse practitioners areexperienced in caring for cancer patients andthey are experts in symptom management.From precision medicine, to immunotherapy,genetically targeted therapy, CAR T-cell therapy,radiotherapy and new treatment combinations,to cancer prevention, disparities research andmuch, much, more, explore opportunitiesto partner with us. Duke Cancer Institute’sexperienced and compassionate staff willassure your safety and be your guide.The Duke Cancer Institute transforms cancercare through integration of innovative researchand world class education. We are devoted tothe mentoring of future healthcare providers.Therefore, at times you may be seen by amedical resident or fellow pursuing specialtytraining in healthcare. Both work closely withyour oncology specialist and are vital membersof your health care team.1212A reference guide to your care at DukeA reference guide to your care at Duke
Frequently asked questionsFor more information and questionsregarding clinical trials for your cancertype, consult your doctor, or visitDukeCancerInstitute.org/Clinical-Trials.You may also contact the Duke RecruitmentInnovation Center at 919-681-5698.What should I know aboutinsurance and my bill?We will process claims for services withyour insurance carriers. You may be askedto pay, at the time of your visit, amountsnot covered by your insurance, such asco-pays, deductibles and coinsurance.Duke participates with most insurancecompanies, Medicare and North CarolinaMedicaid. Prior to your visit, check with youremployer or insurance company to see ifyou have access to healthcare services atDuke. Otherwise, you may be responsiblefor all or a large portion of your bill. Bringyour complete health insurance information,including identification, insurance cards andauthorization forms.Co-payments for physician and hospital careand other balances you may owe are due onthe day you receive services. Your insurancemay also require you to pay for estimatedcoinsurance or deductibles related to yourcare. If you have multiple appointments,your insurance company may require multipleco-payments.Duke is committed to providing care withdignity and respect. If you have questions orcannot pay your bill in full, please tell us andlet us help. Our account representatives andfinancial care counselors, located on everyfloor of the cancer center, will assist you withfilling out applications for monthly paymentplans, financial assistance programs andgovernment-sponsored programs.Who do I call with questions about billingor insurance before or after my visit?If you have any questions about yourco-payments, deductibles or coinsurancerequirements, please call your insurance company.If you have questions about your bill or wouldlike to speak with someone about financialassistance, contact the Duke Health CustomerService Center at 800-782-6945.Who do I contact about my experienceat the Duke Cancer Center?Our goal is to provide you with high-quality careand an outstanding patient experience. To helpserve you better and to identify opportunitiesfor improvement, we depend on the feedbackof our patients. About two weeks after yourappointment, you may receive in the mail apatient satisfaction survey. Please take a fewmoments to complete the survey and return itin the postage-paid envelope provided. If yourfeedback is urgent or if you wish to speak withsomeone, please contact our patient advocatesat 919-681-2020.Learn more about the Duke Cancer Instituteand share your experiences with others.Facebook: DukeCancerInstituteTwitter: @DukeCancerInstagram: @dukecancerinstituteLinkedIn: Duke Cancer InstituteDukeCancerInstitute.org13
Travel & LodgingThe Duke Cancer Center is approximately 16miles from the Raleigh-Durham InternationalAirport (RDU). Taxis, shuttles and publictransportation are available at the airport.Some hotels also offer transportationassistance.The hotels on the following page are locatednear the Duke Cancer Center in Durham.Information is provided as a courtesy and isnot representative of all area lodging options.When making reservations, be sure toask about shuttle services and a medicalroom rate. Many local hotels offer discountsto patients receiving care at the Duke CancerCenter. Duke Concierge Services partners withselect hotels and inns for special medical rates.To secure a Duke Concierge Services medicalrate, patients and their families must call DukeConcierge Services at 919-681-4947 or emailconciergeservices@duke.edu.Long-term lodgingPatients visiting Duke for an extended periodof time may choose to stay at one of thefollowing locations:Caring HouseCaring House offers
Top quality Duke cancer care is now closer to home than ever before. For added convenience, depending on the type of cancer and treatment needed, patients can elect to seek care at one of our four cancer centers located in Wake County. Locations include Duke Cancer Center Raleigh, Duke Women's Cancer Care Raleigh,
