Developmental Disabilities - UCSF Medical Education

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Presented by theUCSF SCHOOL OF MEDICINE and the UCSF SCHOOL OF NURSING20th AnnualDevelopmental Disabilities:Update for Health ProfessionalsCOURSE CO-CHAIRSLucy S. Crain, MD, MPH, FAAPGeraldine Collins-Bride, MS, ANP, FAANMarch 25-26, 2021LIVE STREAM VIRTUAL CONFERENCEThis activity is developed by a community planning and advisory committee made up ofself-advocates and representatives from the following agencies: UCSF, Stanford University,The Arc San Francisco, Golden Gate Regional Center, East Bay Regional Center, StateCouncil on Developmental Disabilities, Support for Families, WITH Foundation, and theCalifornia Department of Developmental Services.Photos courtesy of Support for Families, The Arc San Francisco, and Down SyndromeConnection of the Bay Area

20th AnnualDevelopmental Disabilities:Update for Health ProfessionalsLIVE STREAM CONFERENCEThis 20th annual interdisciplinary conference offers a unique update for primary careand subspecialty health care professionals and others who care for children, youth,and adults with developmental disabilities and complex health care needs. Thisyear’s conference will be a live stream virtual program, employing a live streamwebinar and various user-friendly interactive virtual platforms. The live presentationswill be recorded and made available for 30 days so you can review any content youmight have missed. As in past pre-pandemic conferences, non-profit exhibitors willbe available to provide resources to help you to deliver more informed care forpatients and clients of all ages.Most medical and health professional education programs inadequately addresscare for people with developmental and intellectual developmental disabilities,although they represent a growing (and aging) population in the US. The pace ofnew information and research provides us with exciting opportunities to transformand improve the quality of care providedto these individuals. Ongoing researchVirtual healthcare hasconfirms racial disparities in access tobecome a reality, andquality health care and this conferencefeatures presentations which includeethical issues areemphasis on cultural differences, politicalprominent within the area advocacy and education to promote socialof healthcare advocacy. justice and health equity. In these times unlikeany other, the conference covers a broadspectrum of developmental disabilities, with special focus on autism spectrumdisorders, seizure disorders, Down syndrome, and co-morbidities.Our topics in 2021 include ever-present concerns about COVID-19 and updateson screening, diagnosis, and vaccines as well as associated mental health issues,crisis intervention, and the role of law enforcement related to improving interactionsand encounters with children and adults with developmental disabilities. Virtualhealthcare has become a reality, and ethical issues are evident within the area ofhealthcare advocacy. As previously, we are honored to include self-advocatesamong our faculty. With evidence of increasing numbers of older adults whohave developmental disabilities, we are pleased to include among our esteemedspeakers Dr. Louise Aronson, author of the best-selling book Elderhood.Several practical presentations describe putting research into practice in genetics,endocrinology, gastroenterology, and neurology. Presentations by our expertfaculty should be of interest to pediatricians, family physicians, nurse clinicians,psychologists, and internists who are involved in the health care of individualsacross the lifespan with developmental disabilities, as well as to those in otherhealth-related disciplines including health policy, psychiatry, school health, socialwork, and case management services. While the conference is designed for healthcare professionals, we welcome families and individuals with developmentaldisabilities who wish to learn from the various presentations.We look forward to welcoming you to the 20th Annual Developmental DisabilitiesUpdate Conference and hope that your patients and clients with special healthcare needs will benefit from your participation.Lucy S. Crain, MD, MPH, FAAP and Geraldine Collins-Bride, MS, ANP, FAANConference Co-Chairs

THURSDAY, MARCH 25, 20217:30 am7:50Morning Check-inWelcome and Course Overview8:00Differences Matter: Cultural Factors forChildren and Adults with DevelopmentalDisabilitiesSocial Justice and UCSF InitiativesQ&ABreakUpdate on COVID-19 - Considerations forChildren and Adults with DisabilitiesImpact of COVID-19 on Children andAdults with DisabilitiesQ&ALunch BreakPolitical Advocacy for Health Equity –A Tribute to Stacey MilbernHealthcare Advocacy and EthicsVirtual Healthcare and People withDevelopmental DisabilitiesQ&ABreakMental Health and Crisis Intervention inPeople with Developmental DisabilitiesCrisis Intervention Team Training andthe Role of Law EnforcementPanel Discussion and Q & AStretch Break8:459:159:309:5010:3011:1011:301:00 pm1:201:402:002:152:303:003:303:45ANNUAL SHRIVER LECTURE & AWARD3:50The UCSF Office for DevelopmentalPrimary Care4:30-5:30 pm Virtual Networking ReceptionLucy S. Crain, MD, MPH, FAAPGeraldine Collins-Bride, MS, ANP, FAANAdiaha Spinks-Franklin, MD, MPH, FAAPJ. Renee Chapman Navarro, PharmD, MDYvonne (Bonnie) Maldonado, MDGeorgina Peacock, MD, MPH, FAAPYomi WrongSheraden NicholauJennifer Dresen, MSW, MPH andGeraldine Collins-Bride, MS, ANP, FAANJill Hinton, PhDCamilla Bixler and Gregory YatesClarissa C. Kripke, MD, FAAFPFRIDAY, MARCH 26, 20218:15 am8:25Morning Check-inWelcome and Daily Overview8:30Down Syndrome and Autism SpectrumDisordersADHD and AutismSpecial Olympics: More Than Just Medals9:109:4010:1010:3011:0011:3011:3511:5512:15 pm12:25Q&ABreak“Elderhood” and Disabilities ThatGo Along with Old AgeQ&AGastroesophageal Reflux DiseaseConstipationQ&ALunch BreakLucy S. Crain, MD, MPH, FAAPGeraldine Collins-Bride, MS, ANP, FAANNoemi A. Spinazzi, MD, FAAPAdiaha Spinks-Franklin, MD, MPH, FAAPAlicia Bazzano, MD, PhD, MPH andAllen Wong, DDS, EdDLouise Aronson, MD, MFALauren Alexander, RN, MSN, ANP-BCMaria Josephina Gomez, NPTHE CUTTING EDGE1:15Girls and Women with Autism SpectrumDisorders1:45Genetics – Putting Research into Practice2:25Q&A2:35Prader Willi Syndrome and OtherEndocrinopathies with developmental Considerations inAutism Spectrum Disorders3:45Epilepsy Management4:15Q&A4:30 pmClosing RemarksChristine Wu Nordahl, PhDRandi J. Hagerman, MD, FAAPDiane E. J. Stafford, MDAudrey Foster-Barber, MD, PhDJoseph Sullivan, MDprogram

CHAIRSLucy S. Crain, MD, MPH, FAAPProfessor of Pediatrics (Emerita)UCSF School of MedicineAdjunct Professor of Pediatrics,Stanford UniversityGeraldine Collins Bride, MS,ANP, FAANClinical Professor EmeritaDepartment of CommunityHealth SystemsUCSF School of NursingGUEST FACULTYAlicia Bazzano, MD, PhD, MPHChief Health OfficerSpecial OlympicsCamilla BixlerCo-Chair, Autism Asperger SpectrumCoalition for Education, Networkingand Development (AASCEND)San Francisco, CAJennifer Dresen, MSW, MPHSenior Director of ProgramsThe Arc San FranciscoRandi J. Hagerman, MD, FAAPDistinguished Professor ofPediatrics; Director of the Fragile XResearch and Treatment CenterUC Davis MIND InstituteJill Hinton, PhDClinical DirectorCenter for START ServicesYvonne (Bonnie) Maldonado, MDSenior Associate Dean for FacultyDevelopment and DiversityProfessor of Pediatrics and ofEpidemiology and Population HealthChief, Division of PediatricInfectious Diseases; StanfordUniversity School of Medicine;Medical Director, InfectionPrevention and Control andAttending PhysicianLucile Packard Children's Hospitalat StanfordSheraden NicholauRegional Manager, Bay AreaState Council on DevelopmentalDisabilitiesGUEST FACULTY (CONT’D)Georgina Peacock, MD, MPH, FAAPDirector, Division of HumanDevelopment and DisabilityNational Center on Birth Defects andDevelopmental Disabilities(NCBDDD); Centers for DiseaseControl and PreventionAdiaha Spinks-Franklin, MD,MPH, FAAPDevelopmental BehavioralPediatrician; Meyer Center forDevelopmental PediatricsTexas Children's HospitalAssociate Professor of PediatricsBaylor College of Medicine,Houston, TXDiane E. J. Stafford, MDClinical Professor of PediatricsAssociate Chief, Division ofEndocrinology and DiabetesAssociate Program Director,Pediatric Endocrinology FellowshipStanford University School ofMedicineChristine Wu Nordahl, PhDAssociate Professor of Psychiatryand Behavioral SciencesUC Davis MIND InstituteAllen Wong, DDS, EdD, DABSCDPacific Dugoni School of DentistryProfessor and Director AEGDProgram; Director Hospital DentistryProgram; Global Clinical Advisor,Special Olympics Special SmilesProgramYomi WrongConsultant, Activist andDisability Justice WorkerOakland, CAGregory YatesCo-Chair, Autism Asperger SpectrumCoalition for Education, Networkingand Development (AASCEND)San Francisco, CAfacultyACCREDITATIONThe University of California, San Francisco School ofMedicine (UCSF) is accredited by the AccreditationCouncil for Continuing Medical Education to providecontinuing medical education for physicians.UCSF designates this live activity for a maximum of13.00 AMA PRA Category 1 CreditsTM. Physiciansshould claim only the credit commensurate with theextent of their participation in the activity.This CME activity meets the requirements underCalifornia Assembly Bill 1195, continuing educationand cultural and linguistic competency.Family PhysiciansApplication for CME credit has been filed with theAmerican Academy of Family Physicians.Determination of credit is pending.NursingFor the purpose of recertification, the American NursesCredentialing Center accepts AMA PRA Category 1CreditTM issued by organizations accredited by theACCME.Physician AssistantsAAPA accepts category 1 credit from AOACCME,Prescribed credit from AAFP, and AMA PRACategory 1 Credit from organizations accreditedby the ACCME.UCSF FACULTYLauren Alexander, RN, MSN,ANP-BCNurse PractitionerUCSF Department of MedicineDivision of GastroenterologyLouise Aronson, MD, MFAProfessor of MedicineDivision of Geriatric MedicineUniversity of California,San FranciscoAudrey Foster-Barber, MD, PhDProfessor of Clinical Neurology andPediatrics; Vice Chair of Educationfor the Department of NeurologyProgram Director Child NeurologyResidency; Outpatient MedicalDirector for the Pediatric BrainCenter, West Bay; University ofCalifornia, San Francisco and BenioffChildren's Hospital, San FranciscoMaria Josephina Gomez, NPNurse PractitionerUCSF Department of MedicineDivision of GastroenterologyClarissa C. Kripke, MD, FAAFPProfessor of Family and CommunityMedicine; Director, Office ofDevelopmental Primary CareDepartment of Family andCommunity MedicineUniversity of California,San FranciscoJ. Renee Chapman Navarro,PharmD, MDVice Chancellor, Diversity andOutreach; Chief Diversity OfficerUniversity of California,San FranciscoNoemi A. Spinazzi, MD, FAAPAssistant Clinical Professor ofPediatrics; Medical Director,Down Syndrome ClinicUCSF Benioff Children's Hospital,OaklandJoseph Sullivan, MDProfessor of Neurology and ofPediatrics; UCSF Weill Institute forNeurosciences, University ofCalifornia San FranciscoDirector of the UCSF PediatricEpilepsy Center; Benioff Children’sHospital, San FranciscoPsychologyThis educational activity is recognized by the CaliforniaBoard of Psychology as meeting the continuingeducation requirements toward license renewal forCalifornia psychologists. Psychologists are responsiblefor reporting their own attendance to the CaliforniaBoard of Psychology. Psychologists from other statesshould check with their respective licensing boards.Licensed Clinical Social Workers and Marriage& Family TherapistsUniversity of California, San Francisco School ofMedicine (UCSF) is approved by the CaliforniaAssociation of Marriage and Family Therapists tosponsor continuing education for LCSWs, LMFTs,LPCCs, and/or LEPs. UCSF maintains responsibilityfor this program/course and its content.Course meets the qualifications for 13.00 hours ofcontinuing education credit for LMFTs, LCSWs, LPCCs,and/or LEPs as required by the California Board ofBehavioral Sciences.Provider Number: 64239No instructor or facilitator is permitted to promote oradvocate for a single modality of treatment that isdiscriminatory or likely to harm clients, based uponcurrent accepted standards of practice. All CAMFTcertified education must provide training on how to treatall clients in an ethically and clinically sound manner.

0569Office of ContinuingMedical EducationBox 0742490 Illinois Street, Floor 8San Francisco, CA 94143E Printed on Recycled PaperPhotos courtesy of Support for Families, The Arc San Francisco,and Down Syndrome Connection of the Bay AreaFor early-bird registration, visit our website atcme.ucsf.edu or call (415) 476-5808. For information,cancellations, concerns, or grievances related to thecourse, contact the UCSF Office of ContinuingMedical Education at info@ocme.ucsf.edu or call(415) 476-4251.REGISTER TODAY!Learning ObjectivesAn attendee completing this course will be able to:1. Approach patient care with an increased awareness of social and cultural differences anddisparities, cognitive bias, and implications for healthcare access and quality of care;2. Discuss state and national advocacy, and policy issues surrounding access to care forthose with special needs and creating access to healthcare for children and adults withdevelopmental disabilities in the 21st century;3. Describe the impact of the COVID-19 pandemic on the developmental disabilitiescommunity, the current evidence for prevention and therapeutics, and what to watchfor in your patients;4. Identify the legal and health considerations in interactions with law enforcement and peoplewith developmental disabilities, and implement current strategies and resources for safecrisis intervention and to support de-escalation;5. Provide informed healthcare for people with autism spectrum disorders, Down syndrome,Prader-Willi and other developmental disabilities and develop strategies for appropriatereferral;6. Counsel individuals and families regarding ADHD, dementia, and other comorbidities ofdevelopmental disabilities, and know when and to whom to refer;7. Increase ability to treat common GI conditions in individuals with developmental disorders;8. Better understand how continuing neurologic and genetic research holds promise forputting research into practice;9. Become familiar with educational programs for health professionals to promote advocacyfor health equity for all and acknowledge the contributions of the UCSF Office ofDevelopmental Primary Care in those efforts.

REGISTRATION MOC2100120th Annual Developmental Disabilities:An Update for Health ProfessionalsMarch 25-26, 2021 LIVE STREAM CONFERENCEMail to : UCSF Office of CME490 Illinois Street, Floor 8San Francisco, CA 94143Register online: cme.ucsf.eduRegistration Information: (415) 476-5808Course Information: (415) 476-4251æ Dr. æ Ms. æ Mr. æ Mrs. æ Mx.LAST TIME PHONEFAXEMAILAddress Label Code Letter (see address label: example, A, B, C, D, etc.)Would you like to be on our priority email list? Yes NoDate of birth to be used as OCME registrant number: / / XMonthXDayPlease indicate if you have any special needs:Registration Fees (Receipt/Confirmation will be mailed within two to four weeks): 350Practicing Physicians( 450 if postmarked after 1/31/21) 250Nurses, Other Health Professionals, and Trainees( 325 after 1/31/21) 100Community Members (no CE/CME credit)Make checks payable to UC RegentsPlease charge my credit card: Visa MasterCard American Express for /CARD #EXPIRATION DATE NAME ON CARD (Please Print)AUTHORIZED SIGNATUREPlease check our website for up-to-date information on the course: cme.ucsf.eduGENERAL INFORMATIONRegistration for this virtual conference will beavailable until 3:00 pm on Friday March 26th.Registrants will be given instructions to accessthe conference platform and the electronic coursematerials 1 week in advance of the conference.Recordings of the talks will be available registrantsto view on demand for 30 days post-course.All course times are based on Pacific StandardTime Zone.How to EnrollTuition: 350 Practicing Physicians( 450 if postmarkedafter 1/31/21) 250 Nurses, Other HealthProfessionals, and Trainees( 325 after 1/31/21) 100 Community Members(no CE/CME credit)Payment can be made by Visa, MasterCard,AmEx or check.Register via:Online: cme.ucsf.eduMail:Complete course registration formand send with payment to:UCSF Office of CME490 Illinois Street, Floor 8San Francisco, CA 94143Phone: To register by phone or to inquireabout registration status, please callUCSF's CME Registration Office at(415) 476-5808REFUND POLICYCancellations received in writing beforeMarch 23rd will be refunded, less a 75administrative fee. No refunds will be madeon cancellations received after that date.

UCSF FACULTY Lauren Alexander, RN, MSN, Nurse Practitioner UCSF Department of Medicine Division of Gastroenterology Louise Aronson, MD, MFA Professor of Medicine Division of Geriatric Medicine University of California, San Francisco Audrey Foster-Barber, MD, PhD Professor of Clinical Neurology and Pediatrics; Vice Chair of Education