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Supporting Parents with DisabilitiesResource BinderA collaboration of:An electronic copy of this resource binder is available from Sooner SUCCESS /SupportingParentswithDisabilities.aspxLast updated: 4/29/20
General Tips & Strategies (for all disability types)National Research Center for Parents with Disabilities – resources for parents, socialworkers, researchers, and legal professionals (available in both English and abilities/El Centro Nacional de Investigación para Padres con parents-withdisabilities/index.html?fbclid IwAR1SnveI6sovD6xrpZ0MIOIVwNMhEd3fA0PbQ q 7QnYi4peXqrCC3967eM1 hour Recorded training webinars each specific to different type of disability(Includes Preparing for Parenthood; Parents with Mental Health Issues; Parents withIntellectual disabilities; Challenges to retaining custody; Deaf parents approaches toparenting and ilities/events/past-events.htmlBasic Guidelines for Interacting with People with Disabilitieshttp://www.mghpcs.org/eed portal/Documents/Disabilities/Etiquette.pdfTips for Engaging with Different Disabilities/ People First isabilities/Quick Tips for Interacting with People with content/uploads/EtiqBK 11 16 bility-Etiquette.pdfCommunication ommunication tools.htmPreferred terms regarding people with content/uploads/Language-Tips.pdfChoosing words with rds-with-dignityCreating a Care Notebook to organize clid IwAR0 4rapvZSVjW6QLIn6szDwCQ1CQxKHMQujgxT4flNY65uUHe gj3GoTBMBridgingApps is a program of Easter Seals Greater Houston that provides access toeducational and therapeutic tools—anywhere, anytime—allowing parents, teachers, andtherapists to effectively use mobile devices and apps to target and improve individual skilldevelopment to help children and adults with disabilities reach their highest levels ofphysical and cognitive oadmap/
Download: Sample Picture Schedules and Visual Planners for common family routines (i.e.going to d-visualplanners?utm source facebook&utm medium social&utm campaign understoodorgResources for PwD who wish to foster or sabilitiesRideConnect- ride sharing apphttp://help.rideconnect.com/index.php?title Version 1.0 Press ReleaseFirst hand stories – Parenting with a 32191189698/The Parent Empowerment Network is an E-mail community of parents with disabilities,people with disabilities who hope someday to become parents, and (where applicable)nondisabled partners of parents with disabilities. It is a means of connecting with otherparents, through email.http://www.disabledparents.net/?page id 20Planning Accessible Meetings ings-events-conferences-guide/bookBooks Bind Us is a new nonprofit organization in OKC that will provide free libraries to fosterchildren and low income classrooms in s with disabilities often have lives filled with trauma and less than optimalrelationships. For those impacted by someone's abuse of alcohol this chart containsbehavioral symptoms and accommodations for someone effected by fetal alcohol pdfThe 10 Commandments of Communicating with People with Disabilities is a twenty-two (22)minute interactive video which can be used in diversity training, new employee orientationor customer service training. This video provides the audience a brief glance ofcommunicating with people with disabilities in all walks of life. WesternU staff, faculty andstudents can share this video to stimulate discussion, promote sensitive, respectfultreatment of people with disabilities and promote better communication with people 10 commandments 256k.wmvCasey Life Skills (CLS) is a free tool that assesses the behaviors and competencies youthneed to achieve their long term goals. It aims to set youth on their way toward developinghealthy, productive lives. Examples of the life skills CLS helps individuals self-evaluateinclude: Maintaining healthy relationships
Work and study habits Planning and goal-setting Using community resources. Daily living activities Budgeting and paying bills Computer literacy Their permanent connections to natural supportsAlthough designed for youth, this tool could also be used to help figure out which skillsparents with disabilities may be missing.http://lifeskills.casey.org/clsa learn providerA guide to money management for people with tffinancialeducationbooklet-final.pdfPersonal Finance Guide for People with ople-with-disabilities.phpLife After IEPS – Tools for teaching financial literacy financial-literacy-skills/Budgeting for Students with Autism and Learning Differences (Plus Helpful Tips for rences?utm campaign Full Year Program Enrollment 20172018&utm source hs email&utm medium email&utm content 54669928& hsenc IOEedmtaylMXnKrMdL9TZvUxl57Proh UeUULs-WZu758-OMg& hsmi 54670453Financial Literacy for students with feskill-independent-living/Twitter Chats on Parenting with a u 7f75f7b1421ef4c72add66a33&id 02c4f0a09fTransportation Issues? Consider these options:https://www.lyft.com/https://www.uber.com/ or https://www.uber.com/ride/uberwav/ (wheelchair accessible)http://www.wheelchairgetaways.com/ (accessible van rental)https://www.medride.com/Disabled People Reveal The Things Others Do That Really Don't t-help uk 593564f4e4b075bff0f53401?section us goodnews&utm campaign hp fb pages&utm source gn fb&utm medium facebookDisability and Child modified-becausedisability.htmlPACER’s Self-Advocacy and Disability Disclosure web er/employment/self-advocacy.asp
411 on Disability Disclosure: A Workbook for Youth with Disabilities (pdf), from The NationalCollaborative on Workforce and oads/2016/10/411 Disability Disclosure complete.pdforhttps://www.youtube.com/watch?v iMb5aURm81s (video)Disability Sensitivity Training Videohttps://www.youtube.com/watch?v Gv1aDEFlXq8&feature youtu.beRespite – if your parent with a disability has a child with a disability, money may beavailable to pay for childcare while mom and/or dad take a break – to learn more contactRobyn at Sooner SUCCESS at sooner-success@ouhsc.eduSupporting parents with disabilities in the 272012/Ch13Disabled Parent Online d Parent Blog – Top 10 posts of the ting-projects-best-of-the-decade/?fbclid siumtKsGeIServices for adults with ts/Social Security Disability Benefit lculatorMy next move – a career exploration sitehttps://www.mynextmove.org/?fbclid wV0KpcDbyM"Soft Skills to Pay the Bills" - a curriculum developed by the Office of Disability Employment Policy atthe U.S. Department of Labor to help teach youth those important soft skills or workforce readinessskills. It is created for youth development professionals as an introduction to workplace interpersonaland professional skills, targeted at youth ages 14 to 21 in both in-school and out-of-schoolenvironments. It is a modular, hands-on curriculum with engaging activities and fun games that focus onsix key skill areas: communication, enthusiasm and attitude, teamwork, networking, problem solvingand critical thinking, and professionalism.1 The curriculum can be used to supplement existing softskills exercises or used on its paybills?fbclid Kp4JpfCU4WoIndividuals with Disabilities: Career Ideas Based on your fbclid dieK5mX-yIc
Growth Mindset Printables – Future planning and behavioral change visuals to use in parenteducation. ( h mindset for ad-growth-mindset-activities-forkids?utm source fbshare&utm medium social&utm campaign shareAccessible education materialsmake your parent education materials more lmaterials?fbclid IwAR22yZJss4UPPcgX1SQ8mp9G354W7JBDX9YK3FQHYfWcwWp xjHwVwb3F1kLearn what accommodations work well with different types of disabilities (be sure to page down untilyou get to the charts for different iles/documents/files/Accommodations%20Guide 0.pdf?fbclid IwAR3praalqZ28Wz-3EHJnFEhCWoED6tWEl1CkZLjwM CwqZEy6xMbE77nVC4National Resource Center for Supported Decision Makinghttp://supporteddecisionmaking.org/?fbclid IwAR0XjPQTmGsyStZjvmctwy4N 07XKVVvcfVyo9WXF2CgRHJxFQpKzQSL AHealthcare & Wellness for Parents with DisabilitiesHealth Care access – Communicating with individuals with sensory health-care-access-communication/Do you know a fellow Oklahoman with a hearing, vision, mobility or other disability? TheOklahoma Assistive Technology Foundation will install free special alert smoke alarms toqualified applicants. Learn more about this program and how to apply herehttp://ow.ly/h3bZ302ONxdTools to Empower Clinicians and Women with Disabilities to Interact EffectivelyTraining is an important approach to improving health care interactions between cliniciansand patients with disabilities. This online toolkit is available for use by health educators, aswell as clinicians and women with disabilities, to improve health care interactions.http://www.amchp.org/ / /CliniciansandWomenInteractions.aspxTips for Going to the ipsheets/goingdrtips.pdfNutrition 4 AllDaily healthy recipes and tips for easy, inexpensive home cooking from Oklahoma ww.pinterest.com/nutr4allOK/NIH Easy to read publication page
to-read.shtmlEasy to Read Medlinehttps://medlineplus.gov/all easytoread.htmlTips for First nTipssheet.pdfImproving Print Communication to Promote Health Literacy (Plain/Clear Language)http://www.chcs.org/media/Improving Print Communication1.pdfHow to Write Easy-to-Read Health onal Video on Disability for Healthcare WorkersThe Florida Center for Inclusive Communities/ Florida UCEDD has released a video forhealthcare workers, including reception staff, on providing high quality care for people withintellectual and developmental disabilities. To view the video and read the accompanyingfact sheet, visit:http://www.xcel.flcic.org/Here's a great way to increase communication between a parent with a disability and theirhealthcare provider. It's called a medical encounters encounter-board.htmPhysician House alls.htmlPhysicians at Homehttp://www.physiciansathomeok.com/HealthSmart DigiScan Instant Read Infrared Talking Forehead and EarThermometer for Babies, Children and Adults, Black - 23This thermometer instantly reads body temperature in Fahrenheit or Celsius with light earor forehead contact, using the most advanced technology available. Offers READINGS INSECONDS. Keep it simple. Just lightly touch the thermometer to the forehead or place itgently in their ear to get their temperature. Great for sleeping babies!IT TALKS! You get specialized audio readings in multiple languages: English, Spanish,French, German, Italian or Russian. INCLUDES: 30-reading memory capacity, auto shutoff,detailed guidebook in English and Spanish.Women Be HealthyFor training women with disabilities, Women Be Healthy is an 11-week, 22-hour educationalcurriculum for use by health educators and advocates. The curriculum teaches women withintellectual disabilities about breast and cervical cancer, recommended screenings, and techniquesfor coping with procedures and assertiveness in medical situations. The goal is to increase access toand receipt of recommended screenings. Women who participated showed significant improvementsin health knowledge, behaviors, beliefs and coping strategies. The website also includes links to a seriesof YouTube videos developed for women with disabilities.Audience: Health educators, disability advocates and women with disabilities
bclid IwAR1zo-A4y0hEiq 0TuMspJ2Asx9eZKjAwb5tOpVcu8o06Rbb8SWiYA5YsUSafety Awareness for Empowerment - Developed by the Waisman Center - University of Wisconsin–Madison University Center for Excellence in Developmental Disabilities (free)For youth with special healthcare needsCovers first aid (a frequent child welfare concern)Teaches personal safety and healthy relationship skills to prevent victimization and s/products/health/SAFE.pdf?fbclid V89WKj0GC64Healthy Body Toolkits Puberty can be a stressful and confusing time for you and your child with anIntellectual and/or Developmental Disability (I/DD). In spite of delays in other areas, children withI/DD usually enter puberty around the same time as other children their age. Some children withI/DD, including children with spina bifida and cerebral palsy, may start puberty early (calledprecocious puberty). This toolkit gives you resources and tips on how to talk to your child aboutthese sensitive topics. The toolkit web version is a pdf version of the printed toolkit that you canprint for your reference. Separate toolkits for boys and girls. In English or SpanishThe toolkit appendix has storyboards and visuals that you can use in implementing the methodsoutlined in the toolkit. This file is not included in the printed manual. You may choose to print theentire appendix, or you may want to print a particular page or set of pictures to laminate for everydayuse. You may share these pictures with others who work with or care for your index.html?fbclid ETYVHgPXpMAccessible Healthcare - a self advocate toolkit. Information for parents with disabilities andprospective parents. learn your rights in the healthcare environment and what to do when youencounter ploads/accessible healthcare toolkit.pdf?fbclid 6GpQrrzLw4QOklahoma WIC applications (online)https://www.ok.gov/health/Family Health/WIC/index.htmlPostpartum depression is more likely to occur in mothers with disabilities. If you know a mom whoneeds support for PPD, check out the support and provider directory at Postpartum SupportInternational – ons/united-states/?fbclid AnT JfYlUQResponding to Seizures: New approaches to seizure first d-and-safety/videos-learn-seizure-firstaid?fbclid LLPVf9T5Te8Sex Education for Students with ?fbclid 7GkFEO11v7I
Information for Child Welfare staffCheck out this 2015 technical brief from the DOJ and HHS: FAQ on supporting parents withdisabilitieshttps://www.ada.gov/doj hhs ta/child welfare ta.htmlIndian Child Welfare Acthttp://www.narf.org/nill/documents/icwa/The Child Welfare System: Removal, Reunification, and p272012/Ch5Maintaining families when parents have /aba/publications/center on children and the law/parentrepresentation/maintaining families.authcheckdam.pdfThe Intersection of Child Welfare and Disability: Focus on 3/12/Fall2013 CW360 WEB.pdfNew Policy Brief — Parental Disability in Child ntal-disability-in-child-welfareIncluding PwD in School f
Assistive TechnologyABLE TechAssistive technology resale & recycle program; device financing. Demonstration & reuseprogram includes parenting aids and equipment.Melissa GoforthOklahoma State University - Seretean Wellness Center1514 W. Hall of FameStillwater, OK 74078Local: (405) 744-9748Toll Free: (888) 885-5588Fax: (405) 744-2487http://okabletech.okstate.edu/Equipment Resale & Recycling: http://oec.okstate.edu/Funding Guide: http://okabletech-atfunding.org/Assistive Technology Training Online ProjectInternet-based training in both general and specific areas of adapted computer use. Theyfocus on technology that addresses the needs of students with disabilities in elementaryclassrooms.http://atto.buffalo.edu/DDSD Equipment Recycling Program907 S DetroitEnid, OK 74106(918) 561-1357Described and Captioned Media ProgramProvides free-loan, open-captioned videos to deaf and hard of hearing persons. More than4,000 titles including classic movies, educational videos, and special-interest videos areavailable. Teachers may use CMP videos and their accompanying lesson guides in theclassroom. The CMP videos enhance the literacy value to all students in the classroom, eventhough only one child may have a hearing loss. Participation is limited to deaf or hard ofhearing Americans, their parents, families, teachers, counselors, or others whose use of ourcollection would benefit a deaf or hard of hearing person. Recently added Videodescribed media for persons who are blind and visually impaired.http://www.cfv.org/Loan Closet90-day equipment loans for consumers and persons with a disability. Can also assist with:Info & Referral, Skills Training, Advocacy Training, Peer Counseling, Social/RecreationalActivities, Transportation, & Emergency Intervention.Sandra Beasley Independent Living Center705 S. Oakwood, Ste B-1Enid, OK 737031-800-375-4358 or 580-237-8508 or 580-233-6403Email: .com/ Lew 3/Rehab Tool's Free Search ServiceAssistive technology specialists will conduct personalized product searches, recommendappropriate solutions, and send you relevant links and references to the products that bestmeet your needs and requirements.http://www.rehabtool.com/search.html
No Spill teadyspoon.htmlParenting with assistive technologyhttp://ilc.com.au/ /03/Parenting-with-Assistive-Technology. Genuine Care - Adaptive devices that can help for a variety of disabilities. Check outGenuine Care in OKChttp://www.genuinecareokc.com/AT resources for employment, postsecondary education, and independent nter/assistive-technology/Re-VibeFor those who are easily distracted? RE-vibe is a new reminder bracelet that gives gentlevibrations to help stay on task or remind adults to do something regularly (lke check onkiddos!).https://shop.fokuslabs.com/Succeeding on the Job: Using Technology to Boost the Skills Employers Want (webinartranscript & -employers-wantHow to use your smart phone to improve learning, work and 513/videos/162616634?origin digest&mixpanel id 5108d&acc id 10893569&medium emailFirefly – turns a wheelchair into a motorized scooterhttps://www.youtube.com/watch?v za1j6MTQ6iQVideos - AT examples from Oklahoma ABLE videos?disable polymer 1Different types of support 501140/?type 3&theaterWearables as Supports for Executive Functioning and Independence (see Café Resourcesat bottom of dependence?utm source Feb 5&utm campaign 2018 February 5&utm medium emailNew AT for Baby r-babycare/?fbclid j6f38c4U WgApps to help those with different types of lid Q0I3PIIzp94
ABLE Tech AT Discovery highlights a variety of tools to assist individuals with disabilities in theareas of Computer Access; Daily Living; Environmental Adaptations and Controls; Hearing;Learning, Cognition, and Development; Recreation; Seating, Positioning and Mobility; SpeechCommunications; Vehicle Modifications; and Vision. Each page includes explanations of availableresources, tips, financial information, fact sheets, videos, and links to devices available for shortterm loan from ABLE mAutismTalk App — an interactive communication app that helps first responderscommunicate with people on the autism spectrum through picture-based -app-police-autism/Supporting a parent with autismhttps://asdinfowales.co.uk/resource/2015 -supporting-adults-autism-guide eng.pdfAn employer’s guide to Autism and mployers-guide-to-autismneurodiversity/?fbclid XHWpqFqX k4Parents make mistakes. Even great parents. For parents with developmental disabilities (thinkAutism or an intellectual disability) frustration with themselves when things don't go just right can behard to manage. Here's a toolkit of ways to help parents prepare themselves and respond whenthings go vioral-toolsmistakes/?fbclid IwAR0R1xcb-qatB ntation by Parent with Autism: True Inclusion in Making a Familyhttps://www.youtube.com/watch?reload 9&v xi4CytNlSe0&feature youtu.be&fbclid gWq2lNnOdLMCognitive or Intellectual DisabilitiesInteracting with People with Cognitive, Intellectual or Psychiatric nt-disabilities/Communicating eneral-issues/communicating-effectively/An easy-read guide to Y qORWJ5TGVOVEd5RTg/viewCheck for Understandinghttp://www.healthystart.net.au/ healthys/images/resources/01-TheBasics/Checking for Understanding.pdfAn Age by Age Guide for What to Expect From Kids – And What They Need From ect-kids-need-usMilestones in Action - a FREE library of photos and videos of developmental s/milestones-in-action.html
A single mom with an intellectual disability reveals how happy and scared she was to raiseher ?source feed textAdults with I/DD are often verbally, fiscally, physically, and sexually abused. Learn thesigns to watch for:http://www.andwecanstopit.org/#maintitleAt the Minnowbrook Summer Institute, Aldea LaParr talked with Janice Fitzgerald (Parent toParent NY) about supporting parents with developmental disabilities. Aldea has developed a'prevention' portfolio to protect her family from being institutionalized in times of stress. Apowerful lesson from an experienced parent.https://www.youtube.com/watch?v QZx8dGG7OysHere's a project that can benefit parents with disabilities who need visual tools and strugglewith nutrition for themselves and their kiddos -- Find daily healthy recipes and tips for easyand inexpensive home cooking at www.facebook.com/nutr4allOK andwww.pinterest.com/nutr4allOK Follow the hash tag #Nutrition4All.Donna Nigh Foundation offering grants to Schools, organizations and individuals withID/DD.http://occf.org/nighfoundation/Great chart with examples of how to effectively communicate with someone who has anintellectual disabilityhttp://vkc.mc.vanderbilt.edu/ /g /communicating-effectively/IDD Toolkit www.iddtoolkit.orgThe IDD Toolkit website offers health care information for primary care physicians andnurses to provide improved care to adults with intellectual and developmental disabilities.Checklists and disability specific tables to guide treatment and care. (includes physical andmental health l schedules/routines can help parents with developmental disabilities sequence thesteps in a childcare task or complete all the steps in a daily routine (i.e. their baby’smorning wake up cards/Parenting in PicturesArticles on lots of basic parenting skills and situations with both words and pictures. Coversall ages.http://raisingchildren.net.au/parenting in pictures/pip landing page.htmlBasics Easy-Read Parenting Guides with sy-read-guides-with-text4video-f.htmlParent Clips for 1 on 1 education (Download list of available ips.htmlDesigning support groups for parents with intellectual uct info.php?products id 51
Strategies and Adaptations for working with parents with intellectual uct info.php?cPath 21 28&products id 47Challenges facing parents with developmental /parents.pdfRaising Children – Interactive Toolshttp://raisingchildren.net.au/interactive tools/interactive tools landing.htmlHome Routines Apphttp://www.homeroutines.com/Tools for working on building relationships between parent & gies.htmlSample Picture es-and-visualplannersServing Families when Parents have Intellectual Disabilities or Cognitive Challengeshttp://www.srcp.org/pdf versions/supportingfamilies.pdfAdaptive Functioning Level & /Guidelines for Practice when working with parents with intellectual al-disabilities-and-their-childrenFact Sheet: Teen Pregnancy and Youth with es/Fact Sheet Teen Pregnancy with Disability.pdfSexual Education for Teens with dolescentsarticles/adolesfeature16.htmWAKE UP CALL: PREGNANT AND PARENTING TEENS WITH DISABILITIEShttp://eric.ed.gov/?id EJ846543Baby Buddy Apphttps://www.bestbeginnings.org.uk/baby-buddyHow developmental disabilities impact the sexual health of young cto selector
May 18, 2020 · Casey Life Skills (CLS) is a free tool that assesses the behaviors and competencies youth need to achieve their long term goals. It aims to set youth on their way toward developing healthy, productive lives. Examples of the life skills CLS helps individuals
